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you can always send them to me and i will resave as pdfs

hear hear :emoji_clap:

I wonder which evidence showed that bed rest for people with ME is harmful?!

It's ridiculous to say that they can only give the group a summary - these papers are being used to define the national treatment guidelines - surely they can pay for journal access or email the authors!!

This is one of the companies that the MEA always recommend and they have adverts in the MEA magasine. There is another one that is an ME specialist as well . I rang both up last year and the other one was very underwhelming and not knowledgeable on a basic employment part of an insurance...

Interesting exchange of views on the MEA FB post about this today. I won't paraphrase it as I don't know enough and don't want to say something wrong but it was to do with the people still involved. If someone is more with it today then I am then maybe they could take a look x

might need a feasibility study to determine!

It might be worth writing to the male MP from the debate in Parliament the other week. As he had expressed concern about GET and suggested removing it until the new guideline is published. Telling him that there is no way of flagging non pharmacological treatments that cause harm might help add...

maybe try the slow release melatonin - they work really well at giving a longer nights sleep

It would be good if someone (!) wrote an article on how the guideline was conducted last time and include all of the stand out bits including patients resigning etc.

This time it may be different - there is more exposure of how things are discussed and more public sway - they wouldn't have even gone ahead with the update if it wasn't for public opinion.

oh sorry here you go

Issues that have popped out to me: 1. Harm from GET There are reports of the harm that GET can do throughout the minutes and the need to frame the advise to take this into consideration: From minutes #4: Discussion of GET article - This article doesn’t include that it isn’t suitable for...

Here you go, if you want in any other formats let me know

Maybe bunting would be easier - one flag per person and they could have pictures or writing on. If they are made with string or ribbon on each side then they can just be tied together. Easy to transport, keep etc. Upgraded my bunting idea to t shirt bunting - that would keep the theme of...

He has already avoided the question once but I sent it again so my MP sent it back to him :) Hopefully one of his team will look into it and at least be able to tell us what happened

it's weird there is the other one from 1991 as well though. Best wait and see what Mr Hunt says!

I think this is where I got the first quote from http://www.investinme.org/Article-704 UK-Government Position on ME.htm It also says : Hansard (House of Commons) for 23rd February 1988 at columns 167-168: “There is no doubt that ME is an organic disorder. The sufferers are denied proper...

There is another reference in 1991: MYALGIC ENCEPHALOMYELITIS HC Deb 13 March 1991 vol 187 c955955 §Mr. Jimmy Hood, supported by Mr. Alan Meale, Mr. Don Dixon, Mr. Martin Redmond, Mr. Jerry Hayes, Mrs. Margaret Ewing, Mr. James Wallace, Mr. John McAllion, Mr. Ian McCartney, Mr. Frank Haynes...

i can resave it as that if you want? Or if you want to when you save the document just change the doc type.