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OK Thanks Jonathan.

Would it be premature to share with us the general thrust of the ideas being discussed? I know you are considering some sort of signalling dysfunction and lean towards a particular cell receptor being involved but it would be useful to have this fleshed out somewhat particularly in the context...

That sounds like action myoclonus as per the Wiki entry : https://en.wikipedia.org/wiki/Myoclonus

Interesting that he splits the ME/CFS cohort into post infection and post 'high level exercise' but it doesn't specifically mention the elite cyclists that I thought I remembered. Maybe I conflated this study and the elite cyclist 'deconditioned' case study. Thanks for tracking them down.

I seem to recall a statement in one research paper (it have been one of Yves Jammes papers but I may be mistaken) that there were reports of a number of elite cyclists that went on to develop ME/CFS years or even decades after stopping competitive cycling. Unfortunately I haven't been able to...

I'm not sure what I have. At the start of illness I had frequent spells of syncope/near syncope on standing but was generally at the mild end of the spectrum. Nowadays (unable to work) I rarely feel faint when standing but do experience tachycardia. What I do find though is if I'm on my feet...

@duncan @Jenny TipsforME Thanks for the information. I wonder would having great difficulty holding my arms at or above shoulder height (aged early teens -ten years prior to ME/CFS) fit the pattern?

This is interesting to me as I have had a recurring pattern of what I would term 'mini strokes' or periodic ataxia when I overdo things. It's not paralysis per se but it's always the same - my right foot starts sticking out, then the whole leg starts dragging, then both legs. I end up unable...