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Sorry, I didn't spot his name, but had whizzed through the list, so thought I might have missed it!

Yes, her name and Sarah Tyson both jumped out. Did anyone spot Pete Gladwell?

Totally agree, why don't you contact them and ask?

The survey would need to be completed by pwME (their carers or families), as the MEAction one was. The aim would be for it to be publicised in NHS clinics as well as by charities and other ME orgs.

I've found the DecodeME videos and Q&A, clear and informative

Thanks for the above: BACME's response to a request from Trish asking if more PPI would be allowed to join the conference was: "There will be two Forward ME members attending who can share information with people living with ME/CFS. We have therefore decided that, for this year's conference...

My daughter takes Ondansetron for nausea, not daily, but if we are driving somewhere or she is doing a bit more than usual. It needs to be prescribed. Sorry you are having such a tough time

I am currently a member as we are in the process of applying for PIP, for our daughter. I was very pleased to see the new specific guide. From a quick skim it has several useful pointers for a range of severity. As with applying for UC we will need to emphasise the problem of being able to do...

Would be good if the above link said ME rather than chronic fatigue. (Have just replied to his Tweet asking for this) The headline on the linked page is: Support Myalgic Encephalomyelitis/ Chronic Fatigue research Though the blurb says: "With donors like you, we can find solutions to Myalgic...

Probably best to ask @dave30th. Online view was generally restricted to the coroner, or others speaking. IIRC it was mainly Dave, other press, local and national and Jenny Wislon came with Dr Weir when he gave his evidence.

The original list of questions was compiledby Sean O'Neill the week before the Inquest, when Sarah and Neil were informed that Dr Shenton was not going to be well enough to attend the court. The coroner reviewed the list of questions to be sure they were appropriate. Most of the discussion...

Post from Linkedin re the Br Brian HughesBrian Hughes • 3rd+ • 3rd+Recently retired NHS executive, but not finished yetRecently retired NHS executive, but not finished yet6mo • 6 months ago So today marks a personal milestone in my life in the NHS. After 29 years of my executive career in...

Friend of friend who is a qualified counsellor said a few years ago that when people are referred to her these days, CBT is specified as the treatment. She would much rather use her knowledge and experience to offer her choice of what would help.

Great to hear from you again. :hug: Love the latest blog post

This sectioning is so similar to Bob. He was terrified of it happening again.

This boom and bust phrase is also used when people are being treated for depression. Tablets take a long time to work, and the person may need to try several, before finding one that does. Typically it takes 6 or more weeks, then when they do start working towards the end of that period, some...

Timing of this lack of supervision from above report p11 Whilst there is evidence of some monthly supervision being held, there is evidence from the supervision records which shows a gap of five months between October 2020 and March 2021. From p6: The complaint was raised by Devon County...

Regulatory concerns and concerns recommended for closure While registered as a social worker and employed by Devon County Council; Regulatory Concern 3 You did not exercise adequate management oversight of Adult A’s case in that: i. You did not hold regular supervision with the allocated...

Brief summary of Juliet |Hill's case: Her management oversight of a member of her team dealing with a vulnerable adult was lacking. Were there enough regular meetings? Informal or formal? What records of these meetings with proporsed actions were there. From the final case examiner decision...

I spoke with both Bob's sisters and his Mum, following the funeral and we exchanged a few emails. I was keen to share what he had gone through with the DHSC and sent a couple of emails to Vicky to ask if they would like to send in an outline of what he had gone through. I did not hear back, but...