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Happy New Year to all those in NZ and Aus etc.

"What this study adds? This review highlights intervention characteristics to consider when designing and delivering interventions for children 5–11 years old. Interventions for children aged 5–11 years typically involve parents, span multiple settings, use a ‘First Wave’ behavioural modality...

Yes, I would have taken the CR and then a couple of letters after the R.

@Medfeb do you think there is any point in contacting Nancy Klimas about this, as it is being used to promote psych-based approaches?

Probably unreasonable to expect this before the New Year.

I guess the good news from this is that the "Harms from EC and GET message" is getting through to parents, so their study recruitment has slowed.

Funding is from NIHR. EC seems to have a never-ending pot available. "This trial has been designed and delivered in collaboration with the Bristol Randomised Trials Collaboration (a UKCRC Registered Clinical Trials Unit) which as part of the Bristol Trials Centre receives NIHR CTU support...

Could this be their Christmas equivalent of an April fool? I have vague memories of a doctor friend saying they do a spoof article at Christmas...

Thanks for reading/assessing this @strategist and @Trish. It is very disappointing to see the Karolinska Inst involved with this kind of garbage. I guess I probably had "sickness behavior" once, when I had flu about 23 years ago and spent most of 2-3 days in bed. This is completely different to...

This 3P really frustrates me and i am regularly disappointed when I hear it brought up again. I get the Predisposing eg a couple of genes that may have a pretty small say in whether you get disease x. Yup, often a trigger- sorry Precipitating factor which causes the disease. BUT the...

Info on Systrom Pyridostigmine trial https://www.clinicaltrials.gov/ct2/show/NCT03674541 Meeting abstract, 2016 https://www.atsjournals.org/doi/abs/10.1164/ajrccm-conference.2016.193.1_MeetingAbstracts.A5664

Have you looked at the POTS UK site. It may be worth asking to be referred to a relevant cardiology specialist to see if there are alternative meds, or ones that can be taken in conjunction, that have more effect.

A couple of quotes from this really resonated with me: “it’s difficult to break into a field with so many strong voices supporting a single target. Alzheimer’s has egos and superstars and big personas unlike anything I’ve seen elsewhere.”It isn’t hard to understand why hundreds of academics...

It's another piece from Joleen, on the NICE guideline development committee! "To suggest that any symptomatic experience is purely biomedical is scientifically refutable and lacking in credibility. Modern medicine has moved towards the biopsychosocial model of health, acknowledging the complex...

So sorry to hear about this @Sly Saint

Looks like another waste of ?PhD funding. There is also another paper under review...

How on earth can they say this: Conclusion Some parents and children "struggle to define what would constitute complete recovery." However, signs of recovery were more easily identifiable. Definitions of recovery went far beyond symptom reduction and were focused towards rebuilding lives. I...

My daughter benefits from a daily coffee or Coke (the Cola kind)

Trying out an adapted monoski is high on my list of pipe dreams. I don't have ME (my daughter does), but a spine that cannot tolerate standing. I would love to ski downhill again.

Voted. Thanks for doing this Ben