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  1. M

    The Steph show channel 4 U.K.

    Just had a quick look. Looks like it is in her house, with fixed cameras and a sound man outside the window. Several of her "guests" are in their own homes too and she just had a link to a design/technology classroom in a school where they are putting together "splatter" screens. Should have...
  2. M

    NICE ME/CFS draft guideline - publication dates and delays 2020

    @ladycatlover There was a pretty short time frame for comments, so that a card could be printed and delivered, but then came COVID....
  3. M

    The Steph show channel 4 U.K.

    What about @Tom Kindlon
  4. M

    BABCP Spring Workshops and Conference KCL 16th to 17th April, 2020

    Yes, some good news. Have only just noticed the second half of this title. "Workshop Two Persistent (Medically Unexplained) Physical Symptoms: A Scientist Practitioner Approach Trudie Chalder, King’s College London and David McCormack, Queen’s University Belfast" Does she REALLY believe that...
  5. M

    The biology of coronavirus COVID-19 - including research and treatments

    Interesting report about testing a drug which is inhaled to deliver IFN-B to the lungs to increase the antiviral activity. Phase 2 Trials in asthma have been encouraging. https://www.southampton.ac.uk/news/2020/03/covid19-drugs-trial.page Apologies if this has already been mentioned, have not...
  6. M

    All events about ME should now be virtual

    It will be interesting to see what happens with the Priority Setting Partnership, announced at the CMRC conference. Many of the sessions are remote, but a few included in person days.
  7. M

    Esther Crawley

    Excuse me while I go and throw up.
  8. M

    Functional Neurological Disorders (FNDs) in the media

    Now watching Jo Daniels on BBC news talking about mental health during CoVid probs. ETA: That was the 6pm news.
  9. M

    Trial By Error: What Now?

    Please continue with your fundraising PwME need you.
  10. M

    Functional Neurological Disorders (FNDs) in the media

    Hospital, BBC 1, 19 March 2020 FND not ME On now, this is covering FND
  11. M

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    I think they have ample members of the APPG now, for it to exist/function etc. Great that more MPs are happy to be kept in the loop though.
  12. M

    News from Cochrane

    There are some great and relevant quotes about "experts",in the following BMJ "Field Guide to Experts" https://www.bmj.com/content/329/7480/1460.full.pdf+html
  13. M

    Application of normalisation process theory in understanding implementation processes in primary care settings in the UK: a systematic review - 2020

    This is so waffly/full of sociology blurb but the following sentence under the sub-heading "use and adaptation of NPT" (a couple of paras up from Table 5) made me want to shout out an expletive or 3. "However, one paper suggests that focussing on the individual and collective agency of actors...
  14. M

    MUS: Shaky Evidence, Shaky Practice - Talk by David Tuller in Sheffield. 2:30pm 16th March 2020

    Thanks @Gecko. Presumably this talk will be available to llisten to later on, for those not free tomorrow afternoon?
  15. M

    NHS England web pages on ME/CFS

    NICE is also supposed to cover social care these days. A member of our group has had a social care assessment, and gets some benefit to help pay for a carer. It is means-tested. Would you be eligible for PIP? Also the APPG, chaired by Carol Monaghan MP, is looking into the two following areas...
  16. M

    United Kingdom: reMEmber news

    Not sure there are many members. The main thing they do is organise this annual event and turn up to Forward ME afaik. Have sent them an email alerting them to the error. Looks as though there is just an extra . after uk which is the problem. www.remembercfs.org.uk
  17. M

    Request for help with possible TV documentary on ME

    @Gecko can you think of anyone who has followed GET and got worse, who hasn't yet told their story?
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