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One wonders where this rigour was when the SMC bigged up the Lightning Process.

That reads like garbled nonsense.

And we all know the problems of 'detailed questionnaires'.

You can use this link if you don't want SMC to get the hits: http://web.archive.org/web/http://www.sciencemediacentre.org/expert-reaction-to-study-investigating-a-potential-biomarker-for-chronic-fatigue-syndrome-me/

And SMC before it.

Agreed. Also agreed.

Interestingly, some papers have still run the headline SW warns against.

Try this link instead (if you don't want to give them the hits): http://web.archive.org/web/http://www.sciencemediacentre.org/expert-reaction-to-study-investigating-a-potential-biomarker-for-chronic-fatigue-syndrome-me/

Sir Simon.

From Reuters. The second part seems irrelevant to me. Even if it's measuring a consequence of the illness, rather than its cause, it can still be a biomarker? ETA: It's SW commenting.

More news: https://medicalxpress.com/news/2019-04-biomarker-chronic-fatigue-syndrome.amp By Miriam E. Tucker: https://www.medscape.com/viewarticle/912336 With lots of quotes from experts: https://www.sfchronicle.com/bayarea/amp/Stanford-discovery-validates-chronic-fatigue-13804385.php Over in...

The ones I sent above were helpful but it made the testing centre focus only on VO2max. It was actually my heart rate that dropped on the second day (it wouldn't reach the same level as the day before). Ideally, you're looking for drops of more than 12% in any one measure, I think. ETA: I...

There are mailing agencies that will do this for you. Going door to door in one or more postcode areas to deliver leaflets.

This study supposedly claims that patients are more likely to be white, although I can't see that in the abstract: https://www.ncbi.nlm.nih.gov/pubmed/12562565 It's one of the references here: https://academic.oup.com/ije/article/38/6/1554/668115

This is all really interesting. I'm not getting my hopes up, but it would be great to see how this pans out.

Exactly this. If we don't hear different voices, that in itself is exclusive.

It's not 'identity politics'. It's people's lives.

With all due respect, this isn't an 'invented problem' (and the issue goes beyond stock images). I'm in the #MEAction Black Forum group on Facebook and people have raised some very specific instances where race and ethnicity have been major barriers for them both inside and outside the ME...

I intentionally didn't reply to anyone in particular. I meant 'you' in the open sense, rather than specifically in response to one person. 'One' would have been clearer, but perhaps more pretentious. As for whether we should bring politics into the ME community... It's unrealistic to expect no...

Personally, I have no problem with it. It's his individual perspective, and I do see many men who struggle with things on their own because they're encouraged to toughen up and not talk about things. It might not be your experience described in the article, but it doesn't invalidate his...