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  1. adambeyoncelowe

    Forward-ME Group Minutes - 8th May 2019

    I think it's the latter.
  2. adambeyoncelowe

    Trial in progress: Glucocorticoid dynamics in health and disease, Lightman, University of Bristol

    I didn't realise I was generally apathetic! I thought my apathy was only reserved for guff.
  3. adambeyoncelowe

    ABC: Love and Chronic Fatigue Syndrome

    I just spilt my coffee!
  4. adambeyoncelowe

    ABC: Love and Chronic Fatigue Syndrome

    I'll tell my fiance he's a therapeutic tool. I wonder how he'll take that!
  5. adambeyoncelowe

    'Hysterical' Motor Symptoms Explained?

    Hasn't glutamate been suggested before?
  6. adambeyoncelowe

    Invisibilia: For Some Teens With Debilitating Pain, The Treatment Is More Pain

    There's a really worrying comment here. This is not okay. He sounds like a sadist and there's a very real safeguarding issue here. It's beyond creepy.
  7. adambeyoncelowe

    Heart Rate Variability and ME/CFS

    I've just started using HRV again after seeing this thread. It does capture my crashes quite well, and even when I'm feeling better the LF and HF numbers are still off.
  8. adambeyoncelowe

    Aripiprazole - Abilify

    I'm not sure this is the best place for discussing experimental meds. In general, none of us can give medical advice anyway. Wikipedia lists the following side-effects: That's quite a list.
  9. adambeyoncelowe

    Researcher Interactions Patient Representative Reports from Dr Karl Morten's collaborative group, Oxford, UK

    Easy enough mistake to make. That would make more sense, though, to stop people gaming the system like that.
  10. adambeyoncelowe

    Researcher Interactions Patient Representative Reports from Dr Karl Morten's collaborative group, Oxford, UK

    Was he assessed and rejected before the start of the new financial year? If so, perhaps he can reapply this year? It would make sense to put everything in near the end of the year, so that when it's rejected, you can submit again within a few months because it'll be a new financial year.
  11. adambeyoncelowe

    Researcher Interactions Patient Representative Reports from Dr Karl Morten's collaborative group, Oxford, UK

    So really, we should be expecting failure most of the time, with the assumption that researchers will try again until they get it right or come up with a better idea.
  12. adambeyoncelowe

    Researcher Interactions Patient Representative Reports from Dr Karl Morten's collaborative group, Oxford, UK

    Yeah, normally you'd anticipate their objections and try to answer them in advance. It happens in the arts funding world, too. But usually if you get turned away, you ask for feedback, tweak, and resubmit. You don't give up. Then again, the Arts Council's Project Grants scheme has about a 38%...
  13. adambeyoncelowe

    An Introduction To ME By Dr Hng

    One might be a married name?
  14. adambeyoncelowe

    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    That's one way of looking at it, but consider the other: if charities don't submit, then who will get the tender? Would that work out better or worse for the charities and the people they represent in the long run?
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