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I don't think anyone has been unfair to Hyde here. He's admitted to several things, and we've commented on that. We all make mistakes, of course, but some mistakes are riskier or carry more serious consequences.

It's certainly a shame that doctors like Montoya and Hyde have got into bother, but I think it harms us more when we surround ourselves with people who embroil themselves in scandal. People already think of us as anti-vaxxers and conspiracy theorists, so every time we jump to the defence of...

ME patients are helped by good specialists. If a specialist is making mistakes and not helping patients, then that isn't helping patients. Of course many patients have been helped in the past, and that's laudable, but it's not enough to excuse poor practice now. ETA: And if Hyde has handed in...

'Crucifying one of our own'? This isn't tribalism or religion. If he's running a poor service for patients (one it looks like he wasn't actually supposed to run) then it's right that he stop, regardless of whether we agree with his opinions or not. What about the patients charged hundreds or...

Wow. That's quite a list.

Good idea!

YouTube is big on copyright now. It's almost certainly that.

Thank you. It just wasn't clear to me what those numbers were showing, until you explained it. I didn't assume it was a smoking gun, but they did look weird. So it's the increase caused by a switch from bimodel to Likert scoring. Thanks. That's helpful.

These numbers are confusing me: What are they? This is where it looks like APT and SMC look better on something.

So I may be foggy, but APT and SMT seem to have better improvement/recovery rates at the bottom than the other arms (check the percentages given)?

Can someone explain the improvements to me? On the third tab.

Yes, but (CNS) glial cells have been identified as a possible thing in fibro too. So it might be possible that if CNS glial cells are involved, so are those in the periphery?

Ah, my mistake. I missed the division and didn't realise the numbers didn't all run 0-1. Is the first score up to 3? And another looks like it tops out at 0.8? I can't read it too well. The others look like they're still 0-1. So it looks like you can safely ignore me. But couldn't the...

ETA: This is wrong, so don't waste spoons reading it. (Moved this upfront as a civil service. ;)) Also, the numbers are multiplied together not averaged, so you'll always end up with a low number and this may exaggerate the effect of delayed testing. Let's say you score almost full function...

Interesting. Looks like they're already looking at this for chronic pain. I wonder whether it fits with existing theories of central sensitisation or whether it will now replace those theories with something else?

I've seen the video of children fed this in Africa screaming. It's horrifying.

Good to know. It's scary to think people take this stuff!

As I understand it, WF10 is delivered by specialists via IV and not orally at home or by quacks. Either way, this should not be experimentally taken by patients.

Was it the ME Trust, by any chance? They deal with severe patients and worked with Jessica B (The Girl Behind Dark Glasses). It's possible, as you say, that the physio doesn't see it as GET. Maybe discuss it with them? If the exercises are making you worse and you can't find a baseline, tell...

IMO, most won't want to diagnose or give medical advice. You might want to hire someone separately to do the analysis, although you can work it out yourself. The slideshow by Stevens upthread helps you figure out severity from VO2max alone and a drop in any one score might give you a clue where...