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I'll raise the links issue with Caroline, who is coordinating on this (all the hard work is hers, really). I'm not sure why the links don't work (looks like an import thing), but I think it should be easy enough to fix. There are some formatting issues that suggest that is the problem. I'm not...

This is why they a) need cost effectiveness analysis, like NICE; and b) need a broad range of experts to interpret the data (which has to include patients and carers). Exactly. The problem is that GRADE and similar processes are designed to find effects, not rule them out. You need an expert...

It's not clear, but will their diagnostic process also include exclusionary testing? If so, then it would seem to be quite rigorous.

Also a very important point. I venture that even if it is sustainable, you might see a better response if people were able to stay at home and have adaptations made there instead. Because the act of going to/doing work is probably a net energy drain anyway.

This bit is telling to me: "there were no significant improvements in the PCFS, overall mental component score of the SF-36, or on the PCL-5". This tells me that symptoms weren't much improved and people were still struggling, but if they had suitable accommodations at work and were pacing...

Very helpful caveats in there, I think.

Even Reddit, of all places, has banned the "groomer slur". It's the age-old trope that LGBT+ people want to groom vulnerable people (typically children and women) because we're all sexual deviants trying to corrupt the nation/recruit more people/have our wicked way with your sons and daughters...

Hobnobbing got them this far...

Absolutely. But the other side can say as much to any good protocol too. The best you can do is come up with a protocol before you officially look at any evidence, and get pinky swears from all involved that they promise to be open-minded.

One of the fictional Twitter accounts has 'ME' in their handle and tweets at her protagonist about recent mitochondrial research. Which suggests a) that she reads #MillionsMissing tweets but ignores them (or considers them abusive?)* and b) that she knows enough about what we talk about online...

If the DWP paid all unpaid carers, I wonder what the savings would be for social care more generally? We do seem to have a crisis in social care, and this might take some of the pressure off.

Yep. They need a protocol before looking at the evidence, or any assessment is biased.

The only benefit of this, I can see, is that if they look at the evidence and agree it's crap, that's the final nail in the coffin of "exercise" as a treatment. But the risk is that the process is being influenced and distorted by vested interests, and that more time simply means more...

I think all this is true, too.

Well said.

Some thoughts: "The anxiety and mood disorders in long covid tend to resolve over months, while serious dementia-like problems, psychosis and seizures persist at two years." This sort of aligns with clinical trials that show a small improvement around the two-year mark. It could just be that...

I know I'm a broken record, but I still think its a mistake to indiscriminately refer to OI in ME and LC as POTS, when I don't think it is in many cases. That's not to say it isn't sometimes POTS either. But there are other forms of OI, too, and the type in ME might be unique ME. All it does...

I've been trying the powerful manly thoughts protocol. First I became a builder. Then I became a soldier. Then I became a biker. Then a police man. Then a cowboy and a Native American. I was in the navy. I had fun staying at the YMCA. I went West, but the Petshop Boys were copying me and even...

When I saw the title, I was nervous, but this looks like it might actually be good?

I can sell believe it.