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PR is a good idea. The ME Association and #MEAction have had some success with this, but it needs to be more than just ME Awareness Month and reactive things. One of the biggest barriers we face as a community is the widespread negative attitude towards pwME. You only fix that if you change the...

That was my take too. The headline seems to be a direct refutation of Garner's.

Thank you. I won't comment on the rest, as NICE business hasn't quite wrapped, but I hope we see more people take note of what's in the new guideline.

I noticed a strong influence from the draft NICE guideline in their wording (whole sections either paraphrase or borrow our words). I'm glad it's being useful after three years or so of hard work.

This study was also included in the current (draft) NICE pharma evidence review, if that helps.

Just as a point of clarity: Obviously, I can't comment on discussions or outcomes, but I can reassure you that we see everything. There are no secrets. The summaries are presented because we're often dealing with, as you can see from the evidence reviews, hundreds to thousands of pages of...

Enjoy!

Your teacher had class. If you can watch it, you really should. It's on Netflix (at least in the UK) and on Britbox. It has a few changes between series that keep it interesting, but not everyone likes them equally (they're all perfectly watchable though). It also has a loose grasp on continuity...

Yeah, she's talking about disparities in healthcare outcomes, etc. It's relevant here, too, as we know from the stats. The reasons are usually multiple (e.g., if diabetes is a risk factor for worse COVID outcomes, then groups who are more likely to get diabetes are going to have worse outcomes...

Left side, for what it's worth.

I think the clinics use a pick and mix approach. One of the BACME guides said something like, 'We use NICE 2007 but also Fukuda'. So it makes sense that referrals would meet Fukuda criteria.

Horses apparently get something like ME, but it's hard to ask them about PEM, etc. It could just be overtraining or post-viral fatigue.

Functional has at least two meanings in science. It can mean the function of on organ or bodily system, such as the brain, or functional in the sense of FND. In this case, they seem to mean functional in terms of connectivity and the results of a fMRI. Technically, FND is supposed to be a...

That, too! Well put.

Erectile dysfunction can also be due to emotional factors, such as worry. So if you expect ED as a side effect from a treatment, the worry of that can ironically be the cause of the ED. Catch 22. I'm not sure if it's just due to reporting bias in all cases. I think it's plausible that ED could...

Interesting. My only knowledge of finasteride is via a trans woman who used to be my lodger. But she was also taking oestrogen at various points. I think the finasteride on its own did have this side effect, but she definitely expected it (and many trans women *want it* as a side effect). So I...

Thanks. I'll take a look.

Thanks, I've got the HDQ now. I did start filling in the form, but it asked about what my study would be, how it would be administered, etc, and I didn't want to claim I'm from NICE or conducting a study when I'm not. So thanks to those who found it.

If anyone gets hold of the HDQ, please let me know.

My whole family have had the Pfizer jab and none of us have had issues. Incidentally, the day after my jab, I woke up feeling really great, except for in the arm where I had the jab. In my case, I thought getting the jab in my left arm made sense, but forgot that I always sleep on my left-hand...