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The other thing to remember is that not all statements of support or opposition are published publicly. What a group says behind closed doors can often be surprising.

Most NICE guidelines don't use voting. It's consensus or nothing.

Not everyone has the principles to stand behind what they say, I guess?

My guess is that the print version needed to be shortened to fit the space, so someone other than Sean edited the paragraph without context. Sometimes you get told at 23.55 that an article is 20 words too long and the paper goes to print at midnight, so you just chop what's easiest.

I'll note any questions that come up and see how much time we have. But if I don't get to it, I can always answer on here after the 18th.

We can talk in generalities ('the committee felt') or even what we personally think ('I felt'), but can't say, 'Charles Shepherd said this...' It's basic Chatham House Rules: https://www.chathamhouse.org/about-us/chatham-house-rule We can also say 'this is my interpretation of this part of the...

I would just download everything to be sure, but that's me!

The other downside is that it fuels the 'vexatious activists' narrative, if we also complain about the charities who are ostensibly on our side (past behaviour aside).

Yeah, I have felt that 'I feel great' thing in the short term. I think it's the endorphins. Then they wear off...

It's also the wrong time to do this. If it had been 2011, maybe. But how much of AfME today is the same as AfME then? A cynical person might wonder if this is designed to eat up their resources at a crucial time (e.g., the release of the new NICE GL draft), but I don't think anyone in the...

My guess is that in some cases immediate 'PEM' might actually be OI or fatiguability, which are usually more immediate and feel distinctly different (drained, weak, lightheaded, etc) versus the delayed PEM (flu-like, poisoned, grotty). But it's hard to say, and I think some people get the...

Do we know who made the complaint?

Those are no more generalisations of a political group than of the whole of humanity, though. And if something is an essential process of living, is it really a generalisation, or just a basic need? (I take the point some people may not strictly 'like' eating and drinking, but they certainly...

So MUS seems to mean things like GWI in this study. To me, therefore, this study only shows one thing: people with GWI have more severe and disabling symptoms than those who don't have GWI. And that's kind of... obvious. But not for the reasons they posit. Wouldn't it just make more sense...

I will have a look at the quotations and have a chat with Darren. He seems well meaning but is probably not a scientist. TBH, I think most people won't even read all the text, as it's quite long.

This has reminded me to email Darren back!

It's politics. To move beyond that, we need longer-term planning and policy-making for the NHS that transcends partisan politics, that allows for proper direction and which resists change for political purposes. Otherwise, we'll always have the problem of a vast overhaul every five years as...

No submissions are considered after the consultation, as a rule. There was the consultation and that was that. If any new evidence or argument was supplied after that, it's too late to be considered.

Intersectionality is sort of what biopsychosocial is supposed to be. I.e., it might consider someone not as a woman and disabled separately, but as a woman who is also disabled, and how the experiences of both together might be different to being just one or the other. As was pointed out...

@Suffolkres might know more about this?