Search results

Knowing the biomedical research into ME/CFS, I found the document very disturbing to read.

According to the LC clinic, they are using ME material.

Then acknowledge all the subsequent effects the wound will also cause instead of saying MUS.

They want GPs to get hit with lawsuits if medically unexplained symptoms become explained.

When you say standard cognitive testing done by neurologists, do you mean the brief questions they ask during their clinics, such as asking you to state the day, month, year and what hand you use? When I underwent neuropsychological testing during the initial interview, I explained that some of...

It seems as though a neuropsychological assessment is used to objectively assess cognitive function. https://www.advancedassessments.co.uk/Neuropsychologist/

Thanks for posting @Dolphin

Here is a video of Jon Stone discussing FND with medicolegal services. In my opinion, at 12:14 mins what he said sounds like an FND grab for poorly understood neuro conditions.

You can also use the Wayback Machine to view the changes to the page made over the years. https://web.archive.org/web/20191218040722/http://neurosymptoms.org/fatigue/4594358000 I came across it some years ago when it was less clear what the author was insinuating.

Can anyone list the ME organisations dealing with such things? I've spoken to CNS neuro charities who have flat-out told me ME/CFS is an FND condition. Then after being told my symptoms, they said I might have been incorrectly diagnosed with FND, but going by the poll about everyone's symptoms...

I think he still has the same main secretary, sometimes you end up speaking to others within the same office. It's very likely there is a long waiting list. Keep ringing every so often, so you stay in mind when his office is scheduling cancellations.

His letters for PIP are worth the persistence in trying to be seen by him. I found I had to get the secretaries to apply more initiative, such as asking to be added to his cancellation list and inquiring about telephone appointments. Plus, I had to chase relentlessly. Dr Bansal provides video...

Now he has had involvement with the new ME/CFS NICE guidelines, I find he is also thought of as one of the most knowledgeable ME physicians amongst health professionals who are unaware of his past work in the NHS.

My opinion: I'm not big on viral persistence, the kind you can usually find using the usual tests made to detect infection. However, I'm curious about RNA viral persistence, which may be different, but I don't know enough to provide a comment. Going by the number of participants, I'm hoping...

I agree, and you’ve raised some excellent points that deserve a thread to expand upon. :thumbsup:

I’ve come across several accounts of people using neuropsychological evaluations to help in the ME diagnosis.

Your clarification is handy @RedFox I believe I refer to relapsing/remitting in the above sense too.

Totally agree and it's tiring. I can't see much about what can be done. The rate of FND research seems to be going through the roof and is also used as a reason to suggest inconsistent research for guiding patient care.

I also have the relapsing and remitting kind similar to what's described with RRMS. I experienced remission in 2019 and stayed extremely well for many months, I relapsed black to the fluctuating symptoms in 2020. I thought it was a pretty good article.

Apologies, I wasn't quite clear. I’m unaware of all the medications used to treat Polymyalgia, but I understand anti-inflammatory drugs are used, such as the ones you mentioned. Sometimes people find drugs used to treat a particular condition can sometimes alleviate other non-associated...