Search results

Thanks for the link. The above common onset mechanism described for FND is strikingly similar to the onset mechanism of post-concussion syndrome minus detail, which has a demonstrable etiology in cerebral disease, brain injury, or other insult leading to cerebral dysfunction (ICD-10) and is...

I’ll try making a thread but from what I currently understand, FND lead researchers claim existing and poorly understood areas of brain injury that lead to persistent symptoms, e.g. faults with neural pathways, are not always physical problems caused by the original damage but instead result...

PEM which appears the same as what is called boom and bust in brain injury is categorised as fatigue based even though it includes other symptoms including latent neuropathological pain flare ups.

In regards to ME, I’ve come across too many cases where clinicians who have spoken out about such things have had their careers ruined. I do think if doctors had better options to provide patients, many would opt for it. The tone of how to treat patients has been set. “ME was once considered...

For informative purposes when discussing ME/CFS, the term “brain fog” should include a description of the collection of symptoms that make up the term for pwME, such as; Reduced mental acuity and cognition. Feeling confused or disoriented. Slowed thinking. Loss of short and long-term...

I can think of one case that sounds like FND that I was once told about. I'll try making a post to hear other people's viewpoints.

If a patient isn't paying very close attention to what is happening, then how else can they report symptoms which lead to diagnosis? You can't even get a referral from primary care to secondary care, where progressive, fatal diseases are diagnosed without reporting symptoms first to a GP. I'm...

I think what Trish said makes good sense. As unhelpful as GPs can be towards ME patients, it's still a good idea to have a record of anything you think is of concern. Even if you want to limit reports to "red flag" issues. If you don't think your GP has taken your concerns seriously, you're...

FND lead researchers also say it can start following physical injury as well. Patients need protection.

Update on some recent similarities I’ve come across. This post is about patients diagnosed with CFS who were treated with Post Concussion Syndrome treatment because their symptoms were caused by Brain Injury...

The article probably serves to coach its intended readers into continuing the practice of treating ME/CFS as a non-organic illness. I think it would do more harm than good if good ME researchers fail to respond. From my understanding, within neurology, CFS/ME has pretty much always been...

@dave30th I'm quite concerned about patients being diagnosed with FND as a cause for symptoms without all likely physical causes being ruled out first. Your writing is very good at countering false BPS claims. In your opinion, do you think pwME can better add to public conversations about...

NHS Health care for LC in the UK seems to be shifting this way too. Referrals to fatigue management centres and discussions about mood in relation to symptoms.

That's the impression I get from most biomedical ME researchers, they'd rather not engage in what seems to them as absurd politics. The research demonstrates there are things physically wrong with pwME.

I think it is a good idea for patients to contribute their voices because we know what to say, what may have been overlooked, etc. Good questions. How productive anything will actually be cannot be measured until the process has been carried out. As it stands we can only make assumptions, but...

Surgery, including those involving anaesthesia, as the patient underwent, can cause MRI/CT non-visible non-traumatic injuries. The organic neurological insults that were ruled out should be evidenced, and the others they didn't rule out should be explained before considering conversion disorder...

I'd like to know which organic neurological insults were ruled out.

I wasn't aware that most neurological diseases aren't visible on MRI during the early stages. The symptoms of MS and Parkinson's are likely better understood, so perhaps if a neurologist initially considers conversion disorder due to nothing showing up on MRI, they may sooner rather than later...

I once raised the issue of neurologists treating ME as though it is not physical with a ME expert and was told it is common for "neurologists not to like conditions they cannot see." Sometimes abnormalities such as encephalopathy are not visible on MRI, which might make a majority of them want...

Important for evidence that you actually have cognitive impairment, and it's not you "worrying" you have it, whatever the cause is.