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This is very concerning to read.

I think I am late to the party, but I didn't know it had been said that pwGWI also suffer from PEM.

Thank you very much for putting this thread together @SNT Gatchaman

I definitely developed alcohol intolerance when I got ill and subsequently diagnosed with ME/CFS.

I actually know someone in the UK with a young relative who is experiencing the same thing. Doctors said the child's symptoms were due to them suffering from stress due to exams but it turns out the hospital missed the brain tumour on the MRI. The child’s current state is now dire. The doctor...

From what I'm aware of neurologists all treat conditions of the CNS but they tend to have specialisms. Some focus on conditions that directly affect the brain. I am from the UK. I can let you know how I accessed health professionals via PM.

Were any of the neurologists brain specialists so they have experience of looking at symptoms as a whole and how to differentiate causes? A neuropsychologist is different from a psychologist. A neuropsychologist looks at how the brain works in relationship to behaviour so they provide patient...

I was told it happens with illness but then the breathing pattern returns to normal with recovery. But what they are seeing in LC is that the abnormal breathing pattern remains following expected recovery. The additional explanation was the abnormal breathing contributes towards the symptoms...

Thanks for the info. I’m in need of assistance for the disability-related expenses part now. Like you said I think I've been denied some eligible expenses.

There is a thread about breathing issues/changes on the forum. When looking through my medical records, I reported breathing abnormalities many years ago to my GP. It was probably brushed off as being caused by anxiety. I think the problem is pwME aren’t seen by respiratory services. When I...

I think when mild and working you often use the weekend to recover. The rise in Friday absence for school children could be reflective of that.

Disability Law Service is a charity providing free Community Care Law advice - which I think might be hard to find. In some cases, they provide legal assistance. https://dls.org.uk/free-advice/online-advice/community-care-law/ According to their website, they help in many other areas too. I...

@Paulie Have you ever experienced difficulty awakening from sleep? E.g. someone tried to wake you up, but you were unresponsive, or if you woke up, your mind was completely blank, making you feel confused/muddled/disoriented for a while? I ask because it can sometimes be a stage before what...

I should add I was expressing sarcasm at the fact the intent of these studies is not even being hidden.

I thought it was too brazen to possibly be included.

@Andy did you add this? o_O [My bolding]

I think this will eventually start to happen more. Including healthcare workers wanting to sue their workplace if they contracted LC at work.

A neuro-psych evaluation detects how well the brain is working. The Neuropsychologist will ask questions to further ascertain the causes, but the actual test results will validate if cognition problems are underpinned by neurological impairment. When I realised my cognition had slipped a great...

I need clarification. Is Chronic Fatigue Syndrome considered the exact same thing as ME/CFS and ME within the NHS?

Sorry for going off-topic. You may benefit from a neuropsychological assessment test that evaluates your cognitive performance. It can be used to diagnose cognition disorders. It’s best to be referred to neurology to arrange it, followed by any required diagnosis. Significant and abnormal...