Search results

  1. L

    Symptom exaggeration and symptom validity testing in persons with medically unexplained neurologic presentations, 2015, Lockhart & Satya-Murti.

    Summary Neurologists often evaluate patients whose symptoms cannot be readily explained even after thorough clinical and diagnostic testing. Such medically unexplained symptoms are common, occurring at a rate of 10%–30% among several specialties. These patients are frequently diagnosed as...
  2. L

    Correlation of fatigue with disability and accelerometer-measured daily physical activity in patients with relapsing-remitting MS 2023 Luostarin et al

    Sports medicine is scientific. BPS just appear to have hijacked terminologies e.g graded exercise without the scientific biology underpinnings of the treatments/rehab because their version is for mental illnesses.
  3. L

    Review Multisystem inflammatory syndrome in children (MIS-C): Implications for long COVID, 2023, Constantin et al

    There is also multisystem inflammatory syndrome in adults (MIS-A). Which appeared to be acknowledged sometime after the announcement of MIS-C. https://www.cdc.gov/mis/mis-a.html It would be interesting to know if the two named syndromes are a new phenomenon or if the same mechanism has...
  4. L

    Poll - Have You Ever Believed In Psychosomatic Illness?

    I interpret the original question asked broadly, in meaning, do I have any belief in psychosomatic illnesses? I pointed out that in some cases (as you've highlighted with an obvious mechanism) I will consider its existence. I don't think this thread is only about the ideas Wessley and Chalder...
  5. L

    Poll - Have You Ever Believed In Psychosomatic Illness?

    Here are some further accounts of what a neurologist describes as instances of psychosomatic illness.
  6. L

    Poll - Have You Ever Believed In Psychosomatic Illness?

    So there is this one case that I have been reluctant to share because it is unpleasant and could cause stress. I will enclose it within the spoiler. I think in order to to have the type of conversion disorder people are perpetuating to exist; the trauma has to be significant such as in this case.
  7. L

    Poll - Have You Ever Believed In Psychosomatic Illness?

    You raised some really good points @Hutan. Is it that psychosomatic problems by definition only require mindfulness training as treatment? I think the patient whose stress causes them to break out in a rash may benefit from a drug that reduces the duration and symptoms of the rash if it is...
  8. L

    Poll - Have You Ever Believed In Psychosomatic Illness?

    I voted yes because I think psychosomatic illness does exist and I haven't done enough research to satisfy denouncing it completely. However, I do not believe ME/CFS is psychosomatic. The problem for me is when the psychosomatic module is applied to conditions where symptoms are likely to have...
  9. L

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Earlier this year, I saw a similar article in an esteemed neurology publication aimed at health professionals. The written piece basically reinforces the idea that CFS is not neurological. Unfortunately, I didn't save it otherwise I would have shared the link. It now seems like the Guardian...
  10. L

    The neuroimaging evidence of brain abnormalities in functional movement disorders, 2021, Sasikumar and Strafella

    Another mind-boggling thing for me is this. From what I am currently aware of, when a patient complains of cognitive symptoms linked to the brain, e.g. attention, memory and concentration, the causes are; organic factors, false pretence or psychological disorder. An MRI should be carried out...
  11. L

    Functional Neurological Disorder (FND) - articles, social media and discussion

    I don't think anyone else is aware of what he is referring to either. Could he be referring to the poorly understood medical conditions that he believes are FND? You would think trials as significant as he mentions would be appropriately referenced for patients' reassurance as clearly, he is...
  12. L

    Class Action Lawsuit/Group Litigation/Inquiry for pwME

    This topic has been worthwhile even though group litigation doesn't seem likely. The conversation has focused my attention back on the good suggestions currently being discussed in the original Panorama thread.
  13. L

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Sorry. I didn't mean to insinuate you were arguing against a lack of appropriate care. I probably shouldn't have replied directly to your post. Based on information from one of the main proponents, I've become perplexed at the relevance of the current understanding of FND.
  14. L

    Functional Neurological Disorder (FND) - articles, social media and discussion

    So neurologists shouldn't be caring for patients with poorly understood neurological conditions because of this? I'm unsure how neurology rejects conditions based on his explanations of FND.
  15. L

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Moved posts Can anyone explain what Jon Stone is saying now about the structural changes found in the brains of pwFND? https://neurosymptoms.org/en/faq-2/can-people-with-fnd-have-changes-to-the-structure-of-their-brain-too/ Can people with FND have changes to the structure of their brain too...
  16. L

    The neuroimaging evidence of brain abnormalities in functional movement disorders, 2021, Sasikumar and Strafella

    I remember the toy one and chuckled to myself, thinking there is no way this BS will catch on and now look at where we are. The acceptance was abnormally rapid. One day FND was about toys, the next day it was in the first acquired brain injury & neuro conditions guideline. Which reminds me, how...
  17. L

    The neuroimaging evidence of brain abnormalities in functional movement disorders, 2021, Sasikumar and Strafella

    I'm sure my ME diagnosis was referred to what is now called FND without rule-in signs - if that even makes sense. I was told since I have ME, which is not neurological, it meant I have a non-organic illness. What happened to the lovely neuropsychological evaluations used at the time to decide...
  18. L

    Class Action Lawsuit/Group Litigation/Inquiry for pwME

    Another super informative post @CRG, especially the cautionary points you've raised. Online there are medico-legal services that represent pwME. It could also be a matter of asking charities to find out some information regarding claims to gain an overview of what cases usually entail, with the...
  19. L

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    Which brings me back to @Hutan's suggestion :) I'm not sure if targeting clinicians, policymakers, lawmakers, etc., is helpful right now because there is a lot of vested self-interest in following the status quo and even for those who do not completely agree, the powers that be are bigger...
Back
Top Bottom