Search results

Management of traumatic brain injury (TBI): a clinical neuroscience-led pathway for the NHS Lucia M Li, NIHR clinical lecturer,A Michael D Dilley, consultant neuropsychiatrist,B Alan Carson, consultant neuropsychiatrist and honorary professor,C Jaq Twelftree, AHP consultant in...

In brain medicine clinical practice, cellular damage is accepted despite unclear research. ME/CFS is however too much of a taboo for it to be considered possible.

Everything you have said is why anyone with ME who wants to seek medical care in the foreseeable future will need to understand what can be considered FND and what shouldn't. Any doctor (likely a neurologist) serious about wanting to help will consider performing an MRI as a lot of ME/CFS...

I think I understand what is meant. Patients didn't initially report harm because of wanting to believe the treatments worked or would work if they continued to apply it. But after something like a 1-2 year follow-up, it could have become more apparent that the treatments didn't work and...

Which makes things more complicated as to whether there are non-infectious precipitating factors. What would come first the TBI or ME? Non-infectious precipitating factors are well documented within TBI, and all ME symptoms are also TBI symptoms. I think it's important not to attribute all...

Speaks volumes!

Honestly, excellent read @adambeyoncelowe. Your respose completely sets the record straight. Thank you. :trophy@:emoji_bouquet:

It's strange because I have an old clear MRI, which has been used to suggest I have FND. However, according to FND proponents, I'm unlikely to have FND due to my other hallmark symptoms. So there can very well be something wrong that appears as ME but doesn't show up in MRI and also shouldn't be...

It's super pessimistic, but I think FND is terrible news, especially for pwME/LC. I understand ME lacks research, but within clinical practice, something physical has to be agreed upon otherwise, it leaves patients vulnerable to receiving the diagnosis when they need serious physical medical...

Could mTBI be a cause of neural pathway disruption? I've read it causes changes to brain cells. I suffered a brief loss of consciousness (didn't black out) during my acute viral illness which is often considered a possible cause of my onset of ME. But it also happened again when I relapsed...

MRI and brain scans don't rule out subtle brain damage though. But clear results also give way for a clinician to stop testing and diagnose FND.

https://www.itv.com/news/2022-06-06/call-for-more-investment-in-long-covid-research-amid-postcode-lottery-of-care The Government is being urged to increase investment in long Covid research after being warned that patients are suffering under a “postcode lottery” in care. The Royal College of...

Very interesting. Did you ever discuss your results with a concussion specialist? They are Neurologists who specialise in brain injuries and tend to operate in sports medicine. However, some stressful internal events can cause concussions even if you don't lose consciousness.

It doesn't even make sense when I saw a respiratory nurse at Post Covid clinic who mainly looked at my breathing and said it was physically disordered. What is being decided for us all to receive differing levels of care?

I find it difficult to understand why cognitive testing is not specifically mentioned in the guidelines. Especially when ME is classified under brain disorders in ICD-10. According to my GP surgery, a neurologist orders neuropsychological testing, if this information is correct then it's not...

I think the Rehabilitative guideline referred to might be Rehabilitation after traumatic injury NICE guideline [NG211]Published: 18 January 2022

It is a good guideline and given the make-up of the committee, it was likely parts would later emerge that would come under question.

A few years back, I was advised to take magnesium by a fatigue clinic practitioner. I never did as I wasn't told why I should or pointed to any evidence that explained the reasoning. I've recently had some blood tests back, which demonstrate very high elevated creatine kinase and lactate, which...

I couldn't have said it better myself. Plus, blaming those who cannot 'act normal' as hypochondriacs.

There have long been consistent reports of highly active individuals demonstrating persistent symptoms many weeks, or even months, and several years after various initial infections.