Search results

I recall the events now. I wasn't aware it was a mental health professional who was having the discussions. If this is the case, then it could be at the centre of the issue. However, I did a quick check, and there is no NCD for neurology, so it can be said that someone had to answer. Still...

Can you provide more detail? I’m not aware of what you have said.

I think a proper investigation into the type of CBT that has been and continues to be offered is required. There needs to be a check to see if it’s appropriate for biological causes.

A proper investigation is required because ME is classified as a neurological condition. The SNOMED CT location says: structure of the nerves. It’s either that or it’s made up. Arranging things alphabetically is a sign of OCD. OCD is also part of Bodily Distress Disorder because the patient...

I’ve had enough of the NHS ‘mishaps’ when it comes to ME/CFS. First the dubious dealings within the fatigue clinics, then the support of the NICE guideline pause which ended up with substantial changes. Then not acknowledging PEM on their website and now this……. I’m not confused as to where...

The perfectionist babble is also spoon feed to patients as part of the BPS model within the NHS fatigue clinics. That’s where I heard it first. “The perfectionist is pre occupied with all the things they can’t currently do (daily living activities) due to stress and deconditioning.” “With an...

That too, but it reads like a BPS model advertorial, it doesn’t come across natural. They’ve done too much of a good job to paint the full BPS patient picture precisely in line with the theory. That’s why we can all recognise it.

Like everyone else I smell a rat. No one with ME would be able to frame themselves so perfectly with the BPS false illness belief model or whatever it’s called. True ME patient accounts talk about crippling fatigue and feeling as though they’ve been trampled on by elephants! I’ve never read a...

Pre-existing neuroimmunological disorders and risk of COVID-19 The COVID-19 pandemic raised relevant questions and concerns for neurologists taking care of patients with pre-existing neuroimmunological diseases treated with immunotherapy. Considering that it is well-established that certain...

Peripheral nerve system (PNS) immune-mediated disorders Guillain–Barre syndrome and Miller Fisher syndrome To date, over fifty cases of GBS associated with the SARS-CoV-2 infection have been reported (Table S3) [50]. Most authors agree that the association here is causal rather than...

Encephalopathy Eleven patients (5 females, mean [range 51–78] age 67 years) did not meet possible autoimmune encephalitis criteria [29, 32, 36]. All of them were confirmed cases of COVID-19, 10 with severe disease. There was no evidence of SARS-CoV-2 in CSF in 8 patients tested. Neurological...

Introduction Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) is the aetiologic agent of the coronavirus disease 2019 (COVID-19). Since the earliest days of the pandemic, there have been many reports of central and peripheral neurological disease associated with the infection...

Abstract Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), the aetiologic agent of the coronavirus disease 2019 (COVID-19), is now rapidly disseminating throughout the world with 147,443,848 cases reported so far. Around 30–80% of cases (depending on COVID-19 severity) are reported...

In 2002 I think it was Fuduka. So, participants may/may not have PEM unless specified.

What patient criteria did they use for the study?

I find TV scans pain-free. I also had this investigation a few years back for the same, but everything appeared normal. My heavy and painful periods persisted, and new debilitating symptoms developed right before menstruation. So I had another TV scan a couple of months ago for private...

The saga begins..........

Will do, it's on my lengthy to-do list. I have more planned correspondence with the charity so I will point out that the condition is recorded as neurological on SNOMED CT and accepted by NHS England. I'll make a new post once done.

Interesting, Sarah. I have a long history of the same, so much so that it's been agreed to check if I'm immune compromised. I have a few other red flags, such as a lifelong history of low neutrophils.

Glad to hear this, but recently the staff at The Brain and Spine Foundation told me ME/CFS is FND even though the condition is mentioned on their site. https://www.s4me.info/threads/functional-neurological-disorder-fnd-articles-social-media-and-discussion.23802/page-5#post-426319 [Edited: to...