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  1. Skycloud

    UK: Capita seeks to reverse 'reputational damage' after death of (agoraphobia & fibro) claimant (from brain haemorrhage)

    Capita are a private company who are under contract to assess claims for state social security benefits (“welfare”) by the UK government on their behalf. That’s basically it, and that’s why Capita were taken to court and not the government, if that’s what you were wondering?
  2. Skycloud

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    It’s a pity for Camarata that Sharpe’s latest article in the Observer didn’t come out before he wrote his article. He could have referenced that a few times as well.
  3. Skycloud

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Emails between Tovey and the authors were accessed under Norwegian transparency law and the same can be done for communications between the new editor and and the authors. If Cochrane backtrack under pressure Sharpe will think he’s won the fight but he won’t have, he will just have delayed the...
  4. Skycloud

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Further to the point Frances Ryan makes in her tweet about The Observer editors, the Observer has its own twitter account @ObserverUK. People tweeting might want to use both guardian and observer tags. Edit fixed typo in FR’s name
  5. Skycloud

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    I can’t see a comment facility. Well that keeps things neat and tidy for them @dave30th you’ll want to read this
  6. Skycloud

    Crashed. Could hayfever have done this?

    Yes. :hug::hug: I really hope you improve soon.
  7. Skycloud

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    ‘I have the sole-lution toe to everything.’ He’d say, archly. To comment a little further I Don’t know Wessley, obviously, but to saying that psychiatry is at the centre of medicine makes me think well he would say that wouldn’t he. Just Coincidentally he’s at the heart of (uk) psychiatry.
  8. Skycloud

    Collaboration with SolveCFS

    This is good news @mariovitali thanks for your persistence. I hope this collaboration bears fruit. (Glad you’re still with us :))
  9. Skycloud

    EDS, hypermobility, and the link, if any, to ME/CFS

    Thank you to all who are contributing, v interesting. My sister has an EDS III diagnosis (made in her mid forties) and reports what could sound like PEM. She has delayed onset fatigue, cognitive dysfunction and a general sense of not feeling well. We do debate whether we both have the same...
  10. Skycloud

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Jonathan Edwards expressed concern about this earlier in the thread (mentioned twice, I think?). If my memory's right. Does anyone know if CCI surgery is done much on children? (thinking of how children grow and the rigid metal structure that's implanted)
  11. Skycloud

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Thanks for the link @rvallee. An S4ME response is a good idea, imo. I hope others respond too, it would be great if academics who aren't patients did.
  12. Skycloud

    Beware creating a moral panic about antivaxxers Fiona Fox The Times 2019

    I remember once (from experience, can't verify, don't remember detail v. well) that what was thought to be a sufficient vaccination schedule wasn't - there was an outbreak of one of the MMR infections when my older children were at junior school/early teens so they all needed an additional jab...
  13. Skycloud

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    The author's had until today to amend the review, so my interpretation is that the publication is intended for some unspecified date in the future if/when it passes peer review, or editorial review. (At leastI'm assuming somebody will assess the amendment in some way, but maybe that's not how it...
  14. Skycloud

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    On the Titanic re-arranging dining tables while protesting they are deckchairs. ETA - disease/illness isn't the issue - it's quality of research, efficacy and risk.
  15. Skycloud

    The troubled history of psychiatry

    deleted. sorry tired brain gave way to childish impulse
  16. Skycloud

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    @Tilly I don't want to take the thread too far off topic but I read the article at The Eagle online (university newspaper staffed by students) which as you quoted says I followed the links - the one embedded in the word 'suspect' leads to The Washington City online newspaper article titled...
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