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We're in interesting times! Maybe one day patients' objections will be reported accurately.

I agree, however it is dependent on funding being secured for biomedical research rather than psych/behavioural and we all know problems there.

I agree with Esther12 too, and with you. I also think that it would have been helpful if Rachel Hunter had discussed the problems with the published literature she was using and the need to find ways of moving this area of research forward onto more solid ground.

I hope this re-analysis is brought to the attention of Fiona Watts at the MRC and that she affords the same degree of respect to the authors as she does to the PACE investigators and Cochrane. In other words I hope she makes the effort to read and understand it. It's excellent and timely. Thank...

This sounds promising, good work Joan McParland and Hope 4 ME & Fibro.

I've still not managed to watch this last batch of video's - I need a better day for it. Eliana Lacerda's presentation couldn't hold my concentration and I gave up part way through Rachel Hunter's presentation. I can't make out the slides very well (why did they film from such an unhelpful...

A few more of the presentations: Dr. Eliana Lacerda, LSHTM. About Euromene - Rachel Hunter (health economist) UCL. (@TiredSam briefly becomes more even more famous ;)) - Rachel French, County Durham & Darlington NHS Foundation Trust - Prof. Frances Williams, Kings College London -

Just for clarification, particularly as they've changed names with the new classification system - hypermobility EDS type 3 is now called hEDS. It has no genetic markers and isn't vascular EDS (vEDS) which does have genetic markers and is something different.

Alex has managed to write 2 comments while I was doing my one! Alex is right.

I have signed, because for me it's a protest and I'm all for objecting to Per Fink; it's my way of saying 'NO!'. Once again I'm signing a petition that I don't think will do any good. As I don't think this will work I think we need informed people there to show his dangerous nonsense for what...

@mariovitali - I don't have the knowledge to understand your posts re:machine learning I'm afraid, but it's clear you have put in lot of work and passion into it. Do you intend to try and publish any of this?

Just incase anyone wants to let them know they've published dangerous nonsense:

One thing I learnt the hard way is to be very disciplined about my keys. I fell into a horrible situation a few years ago when I was testing going out by returning some mailorder clothes via the company's shop in town. It was a very easy short drive, free parking, and a short walk I felt was...

I had a bath this morning and it made my nose bleed. Bet they haven't got anywhere put that in their data.

Not working for me either! I've deleted the post. I dunno..perhaps the shrimps carrying the that bit of the internet across the Atlantic have been eaten by a flotilla of jelly fish or something. Or maybe I did it wrong.

I'm another who was told 2 years, though to be more accurate the GP actually said that he couldn't say how long it would take, it could be "2 weeks, 2months or 2 years". I think he must have forgotten to include 2 decades... 2 centuries. Anyway, so far 2 years, like tomorrow, hasn't come.

Thank you for this Graham! I hope Prof. Munafò is genuine in his response.

I can't remember either, that's why I carefully mentioned no names in my comment!

Hi Tilly, I'm sorry you and son are having such a difficult time. Has any medical/health practitioner examined your son re: his walking on tip toes? This really is just a thought, but I just wonder if the tendons in the back of his leg were too short due to growing and perhaps exacerbated by...

If I were reading this I might want to know who made the decision but it's up to you. It's a really good letter, Graham, I hope he takes it on board.