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  1. Skycloud

    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    I have a horrible feeling about who might tender for the first project.
  2. Skycloud

    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    I believe from an interview with her that Nancy Klimas' has been having to work out how to get this done without cash for it. Sorry there's no hope of me remembering where I saw that.
  3. Skycloud

    Depressive symptoms in adolescents with CFS: Are rates higher than in controls and do depressive symptoms affect outcome?, 2019, Chalder et al

    I remember commenting on this on another thread. Brittle asthma is a term used for a dangerous type of asthma that is poorly understood. Risk of dying is much higher due to rapid onset of severe/lifethreatening attacks and the difficulty of treating it. Usual drugs don't work well or at all...
  4. Skycloud

    Response to Michael Sharpe’s claims of harassment

    Personally I can't see anything wrong with the video, but should putting this out there as a tv advert or similar become possible you'd need consent for use of clips from eg. Charles Shepherd/MEAssoc. and other stuff like that that I can't think of.
  5. Skycloud

    ME charities' response to the Reuters article

    Could S4ME tweet/facebook the video @Andy ? It's a good video @Adam pwme thank you for your work.
  6. Skycloud

    Response: Sharpe, Goldsmith and Chalder fail to restore confidence in the PACE trial findings

    This has to have a bearing on the Cochrane review. Surely the weaknesses of the PACE trial paper are so laid bare now that there's no place left to hide them however hard some might try. I'm having trouble weighing this up against my ingrained low expectations though. What do others think?
  7. Skycloud

    #MEAction: A response to Dr Mark Porter’s article about ME in The Times

    To be fair, healthy people do have to stop tweeting to go and do day jobs, so I wouldn't take offence at it. His newspaper articles are a sideline. As to 'have you read my article' type comments, I've come to think that quite a few people don't read things properly before commenting on things...
  8. Skycloud

    Gary Burgess - The ME show, and updates about Gary's health.

    This second series is really good, @Gary Burgess, thank you.
  9. Skycloud

    The Guardian - Rod Liddle vilifies disabled people. I’m tired of the hate. We all should be (2019) Frances Ryan

    @chrisb @Nasim Marie Jafry No worries, I think I've just reached a point where I'm fumbling through brain fog and confusing myself, maybe others too. Sorry. Going away for a rest.
  10. Skycloud

    The Guardian - Rod Liddle vilifies disabled people. I’m tired of the hate. We all should be (2019) Frances Ryan

    Is this a reference to my posts? I can't remember what else has been written in this thread. In case it is I wasn't dissing her.
  11. Skycloud

    The Guardian - Rod Liddle vilifies disabled people. I’m tired of the hate. We all should be (2019) Frances Ryan

    I agree with you @chrisb and @Trish and if it's not clear I'm not turned against Frances Ryan. I think I might have been misunderstood and that's my fault, I find it hard to focus on a writing. My reaction last night was a response to several days of shit. Her article felt like the final straw...
  12. Skycloud

    The Guardian - Rod Liddle vilifies disabled people. I’m tired of the hate. We all should be (2019) Frances Ryan

    I spent quite a long time yesterday writing and re writing a commet on Ryan's article but just couldn't stop it from turning into a complete rant. I re-read the article today and I'm still a little angry and disappointed : the story isn't Liddle!! It's a great shame when someone sympathetic...
  13. Skycloud

    Threats, cyber-bullying now targeting scientists who study Chronic Fatigue Syndrome… when will free speech about science be allowed to exist again?

    Bottom of the item - it's really the fascist medical establishment suppressing Sharpe's work. What a bizarre article.
  14. Skycloud

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    I'm assuming that a 'soon' piece may not be one produced by Ryan, but I could very well be wrong. I think anything by Ryan would be sympathetic and hopefully accurate, though she would need to speak to people Kelland avoided, such as yourself, to do the subject justice. (I'm guessing at this...
  15. Skycloud

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    I agree and think a piece produced 'soon' will likely rely heavily on Kelland's reuter's piece.
  16. Skycloud

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    @Jonathan Edwards Should have added that according to Frances Ryan on Twitter the Guardian will be producing a piece soon
  17. Skycloud

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Frances Ryan is expressing interest on Twitter (perhaps Rod Liddle has done us a favour), we'll have to see what if anything comes of it. I know that she has been aware to some degree about ME for some time.
  18. Skycloud

    Are Wessely, Sharpe & Co psychologically manipulating gullible journalists into writing articles that present them in a good light?

    Journalism in the UK has declined over recent decades. There are fewer reporter man hours expected to produce more content than ever. It's unusual for newspapers, even the serious ones, to do investigative stories about anything. They just don't provide the budget for it. There also seem to be a...
  19. Skycloud

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    So according to Mark Porter anyone writing on the subject needs a thick skin to cope with the feedback. Ye Gods!* How are all these people so unaware, so satisfied with pontificating about subjects on which they can't even be bothered to find out more. And it's not about them and their thick...
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