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Register today for our April 29 (3 pm PT / 6 pm ET) webinar: Investigating Immune Dysfunction and T-Cell Exhaustion via Single Cell Immune Profiling in ME/CFS and Long COVID. Join us for a webinar on exciting new research on the immune system in ME/CFS and Long COVID. Two research labs are...

From Facebook: Long COVID & ME/CFS in Children & Adolescents Long COVID isn't just a problem for adults—children and teens are also suffering from its debilitating impact. As many as 5.8 million children in the U.S. are affected, and far too often, they're overlooked or dismissed. From...

From Facebook: Part 2: Understanding Pediatric Long COVID & ME/CFS Amy Mooney, MS, OTR/L, dives into the impact of Long COVID and ME/CFS in children, and how healthcare providers can help these young patients manage their symptoms with more effective, compassionate care. In her presentation...

I haven't listened to this so not recommending it per se. https://thelonelycrowd.org/2025/04/03/read-by-the-author-take-away-by-alan-mccormick/ Alan McCormick reads his short story ‘Take Away’ from Issue Fourteen. Find out how Alan wrote the story here...

A pity their help was required to help the trial reach its recruitment target. But not the worst use of funds in my opinion. And good to see them willing to fund research outside the UK.

Posted online on April 3: COFFI Consumer-Researcher Online Seminar IV Where lived experience and science meet Persistent symptoms after an infection: what is going on in the brain? Persistent symptoms are part of post-viral fatigue, ME/CFS, and the post-covid condition. This seminar considers...

https://www.tandfonline.com/doi/pdf/10.1080/1369118X.2025.2483834 Sazana Jayadeva & Deborah Lupton (01 Apr 2025): ‘A gift and a curse’: the benefits and limitations of self-tracking Long COVID, Information, Communication & Society, DOI: 10.1080/1369118X.2025.2483834 ‘A gift and a curse’: the...

https://www.researchgate.net/profile/Sarah-Homewood/publication/390335389_Cripping_the_Co-Design_of_Pacing_Technologies_For_Energy-Limiting_Conditions/links/67eaae199b1c6c487769fc69/Cripping-the-Co-Design-of-Pacing-Technologies-For-Energy-Limiting-Conditions.pdf Abstract People with...

ME Research UK: Prolonged exposure to viral infections, such as Epstein Barr Virus which causes glandular fever, could be linked to immune exhaustion in people with ME/CFS. Therefore, a small study in Sweden looked to investigate whether higher numbers of cells from several different viruses...

ME Research UK: Observations from an online workshop on ‘ME research and underserved groups’, have been published. The workshop was organised by Monica Bolton – the lead author on the recent publication, who is a ‘person with ME’. Read more: https://tinyurl.com/3svc79rv

ME Research UK: Former ME Research UK-funded researcher Prof. Dr Carmen Scheibenbogen and Prof. Dr Klaus Wirth summarised muscle research on individuals with ME/CFS, and those with long COVID with post-exertional malaise (PEM). The studies related to skeletal muscle (type of muscle that...

Evaluation of T cell dysfunction in Post Acute Infection Syndromes Nigel McCracken, Lucy Buckingham, and Clément Monteil Virax Biolabs, BioCity Glasgow, Scotland, UK https://viraxbiolabs.com/wp-content/uploads/2025/03/WIRMposter_printing.pdf

https://pursuit.unimelb.edu.au/articles/We-dont-yet-know-what-causes-chronic-fatigue-syndrome,-but-were-improving-diagnosis Health & Medicine Research We don’t yet know what causes chronic fatigue syndrome, but we’re improving diagnosis Using health factors and blood markers, researchers can...

https://www.eurekalert.org/news-releases/1078926 News Release 1-Apr-2025 Pregnancy may reduce long COVID risk Peer-Reviewed Publication Weill Cornell Medicine Pregnancy may offer some protection from developing Long COVID, found a new study led by Weill Cornell Medicine, University of...

Okay. By the way, my comments weren't a criticism: the point of them was to highlight how difficult and demanding the peer-review process can be.

Tuesday, April 15: Free, professionally-facilitated online support group https://batemanhornecenter.org/event/online-support-group-93/ Online Support Group April 15 @ 1:00 pm - 2:00 pm MDT 8 PM in Great Britain & Ireland Find the time in your time zone here...

“Lipkin is personally donating money to help keep a small portion of the research afloat, but this barely covers a single employee and some supplies, he said.” :thumbup:

Guessing he had challenges during the review process either with this journal or elsewhere.

https://bsky.app/profile/tomkindlon.bsky.social/post/3llsbu5mhes2o