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There were attempts to do this in the UK but I don’t think they got anywhere. There was a charity focused on this kind of issue (ME Trust?) but it folded it. There were a few people in East Anglia trying to do something but haven’t heard anything in 5-10 years. A few people were interested in...

“There have been calls to protect the future operation of the Isle of Man's long Covid and chronic fatigue service, following the health department's mandate to Manx Care.” https://www.bbc.com/news/articles/cly1v127882o

Okay, I did test it in a couple of ways but it no longer works for me either. I've replaced it with something more regular.

Full issue with a cover for what it is worth https://www.frontiersin.org/research-topics/7718/pdf via https://www.frontiersin.org/research-topics/7718/advances-in-mecfs-research-and-clinical-care/magazine

https://www.pharmexec.com/view/new-insights-t-cell-exhaustion-inflammation-long-covid New Insights Into T Cell Exhaustion and Inflammation in Long COVID April 17, 2025 By Don Tracy, Associate Editor Commentary Article Nigel McCracken, chief operating officer, Virax Biolabs, discusses new...

Source: 132nd Maine State Legislature H.P. 1123 Dale: April 17, 2025 URL: https://legislature.maine.gov/legis/bills/getPDF.asp?paper=HP1123&item=1&snum=132 FIRST SPECIAL SESSION-202 ------------------------- An Act to Encourage Continuing Education Relating to Certain...

The CENSSAS Study Investigating Associations Between Central Sensitivity Syndromes and the Autism Spectrum Sarah Grant Institute of Psychiatry, Psychology, & Neuroscience King’s College London Thesis submitted to King’s College London for the degree of Doctor of Philosophy (PhD) 2024...

Blog post that followed this paper: The Link Between Loneliness and Chronic Illness A recent study explores the intersection between loneliness and chronic illness. https://www.psychologytoday.com/ie/blog/chronically-me/202504/the-link-between-loneliness-and-chronic-illness

https://www.sciencedirect.com/science/article/pii/S0277953624000406 Social Science & Medicine Volume 343, February 2024, 116596 There but not really involved: The meanings of loneliness for people with chronic illness Author links open overlay panel, , , , , ...

https://us02web.zoom.us/meeting/register/tZwsdO6gqjMuEtLm13fFAX_5RnkoX6WB0-yK#/registration 2025 GNG-INA Monthly Academic Meetings - 24 April 2025 Description GNG-INA Monthly Academic Meeting – Thursday 24 April 2025 Note: Slight time change this month – all times below in UK Time – Check...

Graphical abstract

ME Research UK: Second place in ME Research UK's Founders' Science Writing Award went to Krista Clarke, who is a postdoctoral research fellow at the University of Surrey. Here is Krista's entry on the development of quantitative diagnostic biomarkers for ME/CFS: tinyurl.com/38455t5u

ME Research UK: Yesterday, a study identifying concerning findings regarding diagnostic delays for people with ME/CFS was highlighted. Following on from this, a study in Germany has identified that 51.6% of participants who experience ME/CFS symptoms but who did not (yet) have an ME/CFS...

https://activity-matters.com/wp-content/uploads/2025/03/Artikel-Activity-Calculator-a-method-for-achieving-a-balanced-lifestyle-for-people-with-chronic-fatique.pdf Authors: Irma Pinxsterhuis, Greke Hulstein – van Gennep, Karin ten HoveMoerdijk and Kirsti Hellesøy

Long COVID individuals found to have a disruption in the critical brain bridge linking the brainstem and cerebellum - Thailand Medical News...

I don't recall hearing about this before.

Patients can attend but it hasn't been cheap.

Merged From =AZWqxd7aECGANPbjtlQp46pw9BZ-BwwBOOizrqKByHGTXSDxkQC4Qk6TmP481_JrJiM0-IBM0yNk7XfIe51PH1UPAye9BhffJno2DAf3VJqT8VubWTRHSK3111MA9XYBmAKthLkyE8C-2ssIdvUXUrWmBK7oinCFHCnkhIpir0LDBA&__tn__=-UC%2CP-R']M.E Support Northern Ireland Dr. Night Speight, consultant paediatrician, our patron and...

NOTICE: 2025 IACFS/ME Conference Changed to Virtual Format! October 22 - 25, 2025 Online Abstract and Workshop Submission Deadline Extended to May 19, 2025...

John Milne MP joins Action for ME's Parliamentary Champions network. Go to, https://www.actionforme.org.uk/john-milne-mp-pc-network/ Parliamentary Champions https://www.actionforme.org.uk/campaign/parliamentary-champions-network/