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https://www.atsjournals.org/doi/abs/10.1164/ajrccm.2025.211.Abstracts.A7881 Exercise Pathophysiology in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID: Commonalities Detected by Invasive Cardiopulmonary Exercise Testing J. Squires 1, S. Palwayi 1, P. Li 3, W. Xiao 3, K...

Small error: The NICE guidelines recommending GET and CBT came out before the PACE Trial results came out.

Dan Wyke - a therapist's perspective Dan Wyke (a person-centred counsellor from the South of England) reflects on his experiences as a therapist and person with MECFS. He shares ideas and suggestions for both people with #MECFS and also therapists who work with them. Amongst other things, I...

Link also includes these codes which might link to more information about the study NIH: R01AR077418, R01AR077418-S1, U24NS112873-S1.

Station: SolveME / YouTube Date: May 1, 2025 URL: Item: Immune Dysfunction & T-Cell Exhaustion via Single Cell Immune Profiling in ME/CFS & Long COVID

https://batemanhornecenter.org/event/online-support-group-94/ Online Support Group May 13 @ 1:00 pm - 2:15 pm MDT 8 PM in Great Britain & Ireland Find the time in your time zone here...

https://www.eurekalert.org/news-releases/1082365 News Release 30-Apr-2025 Long COVID biomarkers found – associated with respiratory problems Peer-Reviewed Publication Karolinska Institutet Researchers at Karolinska Institutet have identified biomarkers in the blood associated with symptoms...

https://www.nature.com/articles/s41590-025-02135-5 Article Open access Published: 30 April 2025 Identification of soluble biomarkers that associate with distinct manifestations of long COVID Yu Gao, Curtis Cai, Sarah Adamo, Elsa Biteus, Habiba Kamal, Lena Dager, Kelly L. Miners, Sian...

Source: National Academies Sciences Engeneering Medicine (NASEM) Date: May 9, 2025 URL: https://mailchi.mp/02032405cbfd/charting-a-path-toward-new-treatments-for-lyme-infection-associated-chronic-illnesses Charting a Path Toward New Treatments for Lyme Infection-associated Chronic Illnesses...

https://www.actionforme.org.uk/quarterly-newsletter-april Action for ME's Quarterly Newsletter 29 April 2025 Contents Policy & public affairs Parliamentary Champions Welfare benefits survey & consultation APPG meetings & updates Support Services Training schools to better understand &...

Open to people worldwide: "Create your own custom poster" about myths/facts about ME https://worldmealliance.org/worldmeday/custom-poster/

A thread on this.

I signed up a relative at one stage and out of the blue, they were sent a $50 gift voucher in the last day which has gone to an ME/CFS charity. I didn’t get one.

https://www.imrpress.com/journal/JIN/24/4/10.31083/JIN25488 Static and Kinetic Disequilibrium are Central Neural Signs in Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome-Therapeutic Effect of Repetitive Transcranial Magnetic Stimulation info@miwa-naika.com (Kunihisa Miwa) J...

It all seems to be free now here: https://muse.jhu.edu/chapter/4154516 CONTENTS Foreword: Into the Pandemic’s Disability Hinterlands Ed Yong Introduction: How to Be Disabled in a Pandemic Mara Mills, Harris Kornstein, Faye Ginsburg, and Rayna Rapp PART I. LIVING WITH “DISPROPORTIONATE RISK”...

Another time a student competition winner got published in a medical journal: https://www.s4me.info/threads/learning-points-about-myalgic-encephalitis-chronic-fatigue-syndrome-bridging-the-gap-between-research-clinical-practice-awareness-2024-wahi-singh.38689/

ME Research UK: Liz Smith CBE MSP has laid a Motion before The Scottish Parliament inviting fellow MSPs to support the proposition "That the Parliament marks International ME Awareness Day 2025 on 12 May" and also, as one of ME Research UK's regional list MSPs, to commend our work as ME Research...

ME Research UK: Is hyperresponsiveness of immune cells following an infection helpful or not? And how might this relate to ME/CFS? A recent review explored this topic - https://bit.ly/3Ek3kU3

ME Research UK: Approximately 30% of ME/CFS cases associated with an infection are thought to be due to infectious mononucleosis – glandular fever, caused by the Epstein–Barr virus (EBV) – but not everyone who has an EBV infection develops ME/CFS. A study published in the journal...

https://openresearch.nihr.ac.uk/articles/5-39/v1 Research Article Defining a High-Quality Myalgic Encephalomyelitis/Chronic Fatigue Syndrome cohort in UK Biobank [version 1; peer review: awaiting peer review] Gemma L. Samms1, Chris P. Ponting Abstract Background Progress in Myalgic...