Search results

Those are personal experiences, but this is also similar to what happened to me. I have never once brought any information like this forward to a physician. The first time I even heard of the concept "chronic fatigue" was from the GP who diagnosed me, and I'm pretty sure she put fibromyalgia on...

That's pretty much the bind here. What is the alternative? Not talking about those issues? Ignoring reality? That's not helpful. They do exist, and in most cases are definitely sometimes a consequence of infectious illnesses, LC has made that obvious, regardless of how messed up everything else...

It's a coherent strategy in itself, the idea that a lot of evidence that this is a thing is something that should lead to more effort at solving it is rational. Where it fails is that the way medicine works, where it does not exist, cannot exist, until they have the full picture, is not...

I doubt most physicians promoting a CBT/GET or a generic rehab model have heard of Wessely either. It still impacts what they do, they just don't know it. Wessely didn't put himself as a defining authority whose every word had to be listened to, he worked far more effectively behind the scenes...

Clearly nothing a national exercise and beef tallow program can't fix.

Words and their meaning, why bother? So much of the 'research' that goes on in chronic illness is just a worse version of this meme: Food $200 Data $150 Rent $800 Candles $3,600 Utility $150 someone who is good at the economy please help me budget this. my family is dying Given how little...

IIRC it was even specifically mentioned that international outreach was necessary for this program to work since expertise is always so small that relying on whatever exists in any given country is almost pointless, even in a country the size and prosperity of Germany. This is such a no-brainer...

The growth of psychosomatic models during that time explains this far better than the incoherent reasons written down, frankly. This is about the time Wessely was mouthing off and getting a lot of traction, warning about dangerous militants and so on. He and his gang made pwME extremely...

While sometimes it might feel like it's a bubble thing, something we only perceive because of our unique (it isn't) experience of illness discrimination, this is a huge problem that I keep seeing in other communities, even in discussions on general forums. There is a sub-reddit for chronic...

I don't think you are. Those reasons are not coherent, though, and they ultimately don't matter, as we could dutifully follow everything they expect of us, we could 'behave' the way they want us to, and they'd just find another excuse for it. Two things can be true at once. This is the ultimate...

There is no plausible way of doing that, though, so the whole issue is moot. It's not possible to reach even a majority, let alone influence them, and it wouldn't change a damn thing anyway, if that excuse went away completely, it would simply be replaced by another, and if that excuse went away...

We don't have any standing for this, it won't work until a shift occurs, but it will be important to go out and find all of those documents for the massive class action lawsuits that will be necessary to redress this and stop it from continuing. Until then we are completely stuck in a bind...

Which is especially maddening as it exposes that the so-called right to health care is no such thing, but the pretense that it is (except when it isn't) remains, so nothing can change because uncomfortable truths are simply ignored while anything that covers it up gets amplified.

There's also a problem with methods. Obviously there aren't that many relevant papers, it's that keyword searches flag a lot of stuff that isn't relevant. That's narrowed down after the fact, but that's just bad information management and a lot of unnecessary workload. This was a problem with...

There is likely some of that, brain fog has definitely become more common and it is terrible for driving performance, but this might be the first time I have seen something on LC where a serious and coherent biopsychosocial model could have a bit of usefulness, because the social context of the...

There is merit to some of this, there are obstacles to wearables that usually aren't considered, but it veers off track with trying to make this about stress, a word that probably has more meanings than the word thing, and doesn't really apply for the most part unless stress explicitly means...

I don't doubt those things are being said and written down, and possibly even that they actually think they are legitimate reasons, but those justifications are not valid and would be happening regardless of anything. In fact they did happen, decades ago, and we are still living with those...

I know it's not directed at me but I do want to make it clear that both my rational and irrational anger are 100% directed at the medical professionals who are failing us, as well as the dysfunctional systems that fail to enforce their own rules and regulations in ways that explicitly destroy...

I do read this in the original post, and I know it only repeats justifications said in private and is not meant as a blame by professor Edwards, that if patient just stopped saying those things then we would have had help. I just completely disagree with it. It might be that many physicians are...

I'm not saying this discussion is victim blaming, I'm saying it accepts the idea that this is why we are mistreated and discriminated against, which is simply false. If none of those labels had ever been discussed, nothing would be different. I just can't see it having happened differently, and...