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Research study funded by NIHR.

May be useful for your book. https://academic.oup.com/hmg/article/29/R1/R117/5879704

There are some low key doctor to doctor contacts. It's probably worth tweeting Jonathan Edwards testimony to NICE at regular intervals to pick up new LongCovid cases.

Could you use your professional clout to suggest " Monitored pacing guidance" to LOCOMOTION team instead of APT? Words matter!

Can anyone confirm if there's any research anywhere into PEM in LongCovid?

Agree @Peter Trewhitt

Are there psychologists/ psychiatrists with LongCovid asking awkward questions about CBT/GET?

@InfiniteRubix This is why I'm unhappy about DoctorswithME using "neuroimmune" What is wrong with stating we don't know because of a lack of research.

The author has suffered medical disbelief herself, hence her interest.

News from N Ireland "I thought you would be interested to hear that as a result of your e-mail to HF as below - I have been contacted by GD Senior Education Manager at the CEC re 'developing an agenda for a webinar on ME." The catalyst was asking a nurse in charge of education to watch...

My brother-in-law is swimming........ https://www.justgiving.com/fundraising/alex-lee191k?utm_source=Sharethis&utm_medium=fundraising&utm_content=alex-lee191k&utm_campaign=pfp-email&utm_term=ad8db439fb404e7aa0e2949021ff4c2a

This could be useful if they assess the looming double social care impact of elderly parents caring for PWME.

https://www.s4me.info/threads/p1 “she-used-to-be-tigger-and-then-she-was-eeyore”-a-qualitative-study-with-children-and-young-people-with-cfs-me-exploring-predictors-of-recovery.20129/ Not sure if you have seen this? @EducateME Is it possible to get some of the paediatricians with LongCovid...

#NaturalRecovery

I sent Edwards testimony to NICE to the Birmingham LongCovid research group. Thanks very much Dr Beatty. My colleagues and I will review this document. Kind regards, Shamil

A comment from a GP after reading @Jonathan Edwards testimony to NICE "I’m pondering what immense additional suffering has been added to the burden of sufferers by the approach of the health care world. A gaping hole, and worse-wrong teaching, for medical schools to start to address."

How do we get Dr Elaine Maxwell to understand that ME has multiple symptoms, she seems oblivious in the NIHR article?

I sent Jonathan Edwards Scottish Government inquiry submission to McGregor. He replied and said he would share it with colleagues, but it's not enough.

He follows me on Twitter, and recently decided that IBS is not psychosomatic.

Doesn't Dr Pope realise that " passing out unconscious" equals " psychogenic non-epileptic seizures.?