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The model that the airline industry use is now being used in some surgical units to improve safety. From the little I know, immediate reporting of an incident is required, plus a member of the cabin crew has equal status to the pilot.

Phair talked about this causing problems in the midbrain and Barnden recent neuroimaging studies showed decreased signalling in the brainstem. Now we need VanElzakker neuroimaging studies to show brainstem problems as well........

Needs to be sent to the Reuters journalist, who wrote Cochrane article

What does she think of e.g. the breast cancer lobby groups? Or does it depend on which lobby group you are? Why call them unrepresentative, when the NICE guidelines committee 2007 was unrepresentative?

Some PWME say they never get viral infections, whilst others ( myself included) seem to richochet from one to the next. Do you think this implies differences in the immune system, so researchers need to look for subgroups?

NICE are supposed to assess cost effectiveness of treatment. The LTFU for PACE and FITNETdutch showed no overall benefit from CBT/GET. Surely these therapies are more expensive than standard medical care because of the umpteen therapists involved?

Surely its only the recovery rate at long term follow up that matters. ? Even if PACE and FITNETdutch had been flawless, the LFTU showed no benefit. Does Fiona Watt not know that? LFTU studies ought to receive more prominence in journals than the original study.

I agree with you about people being different in these scenarios. It seems to me that psychiatry/ psychology became obsessed with creating " boxes" to slot people into, and then recommend CBT for everything. I worked with some brilliant neuropsychologists in the 1980s, who treated each patient...

I've often wondered if any cardiologists were shown the results of the walking test in PACE. I suspect that physicians never read PACE assuming it to be for psychiatrists.

Psychological inflexibility? I assume they are referring to the psychologists who are completely inflexible.

One advantage of SEID would be to concentrate research minds on the exertional intolerance. We'd all be able to do a bit more and have better quality of life if this could be reduced.My cognitive function is quite normal for about 15 minutes and then it declines which I think is more likely to...

Can we also get rid of the idea( which CDC has again put in it's guidelines) that once a PWME has learned to listen to their body, they are ready to increase their exercise level? Theres no correlation between the two. I have listened to my body for 25 years now but I haven't been able to...

Think ?Dr Koroshetz @ NIH has said it's too early to form subgroups. Is it up to researchers to look for subgroups within their data?

Just to add to the confusion.David Systrom ( Harvard) started his research using invasive CPET with the symptom of exertional intolerance rather than any diagnostic label. He has found the same results for exertional intolerance in fibromyalgia, POTS and ME. He's a pulmonologist.If the term...

Harvard university are carrying out open label placebo studies where the patient knows they are receiving a placebo. ( Inside Health BBC radio 4 09/10/2018)

So it would be a great treatment for multiple sclerosis, MND, epilepsy, Parkinson's etc ???? Where's the brain scan evidence??????

The USA now have neurogastroenterologists who recognise problems with the autonomic system contribute to some IBS cases.

It took a public inquiry in N. Ireland to uncover the hyponatremia scandal in which 5 children died, dating back about 15 years. The person leading the inquiry was utterly scathing about the cronyism among N. Ireland paediatricians, which prevented the truth emerging earlier.

Probably going off the point but there's a pilot study happening in the UK during the academic year 2018/19 on methods of teaching medical students about ME, plus a survey of all UK medical schools to find out what type of education they currently offer.

That's the one.