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  1. obeat

    NICE to update guidelines for MS - Oct 2018

    I wish someone would do a trial of mindfulness versus the patient spending the same amount of time doing a hobby they enjoy ( and can still manage) . I doubt that mindfulness would be superior. Of course that's my bias at work! I'm quite sure over the lifetime of an illness CBT/ mindfulness make...
  2. obeat

    Cochrane ME/CFS GET review temporarily withdrawn

    Who will he debate with? He is trying to CBT everything! Surely that's a big agenda he's trying to force on healthcare. Isn't he an activist for the CBT lobby???
  3. obeat

    Backbench Business Committee for next Parliament debate

    Hope4mefibro are hoping to get USB sticks of Montoya and Weir talking about GOOD care. They are forceful about the harm of exercise. These could be useful for your MP to watch.
  4. obeat

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    I completely agree. During ME awareness week, a report published by the BBC had a quote from an unnamed GET expert that " it was safe and useful for SOME". Was that an admission that it doesnt work as well as they claim ? Maybe a less rigid one size fits all is possible. I would prefer that GPs...
  5. obeat

    Graded exercise therapy for ME/CFS is not effective and unsafe. Re-analysis of a Cochrane review (2018) Health Psychology / Vink

    My history may be wrong but I think in the early days exercise testing was only performed on day1, as no account was taken of postexertional malaise. The first 2 day study was 2007 which then showed abnormalities. Unfortunately some of the early 1990 studies concluded that our perception of...
  6. obeat

    Turns out naps are not so bad for you. (New study, open access.)

    The NHS is now spending money teaching sleep hygiene to patients recovering from cancer surgery.
  7. obeat

    Graded exercise therapy for ME/CFS is not effective and unsafe. Re-analysis of a Cochrane review (2018) Health Psychology / Vink

    Maybe every time MS tweets we should ask him via Twitter what people's reasons were. Keep reminding his followers of the dodgy cherry picked data
  8. obeat

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Perhaps it's possible for lay members to point out that harm cannot be reported via the yellow card system. Patients can make a complaint about the healthcare professionals but that is more difficult to do. Especially for people with energy and cognitive problems.
  9. obeat

    Cochrane ME/CFS GET review temporarily withdrawn

    MS patients have also been asking to have their views on research taken into account, so we're not the only patient group who want this.
  10. obeat

    David Tuller: Trial by Error. A statement in Support of Cochrane

    Anyone able to send this to Kat Kelland? Might make her think.
  11. obeat

    Cochrane ME/CFS GET review temporarily withdrawn

    A group of UK psychologists are arguing with RCPsych. about SSRI and withdrawal effects. The TODAY program had an interview/ argument between one of the psychologists and guess who....... Clare Gerada.
  12. obeat

    Cochrane ME/CFS GET review temporarily withdrawn

    There are fewer green dots overall , so studies are not as robust as author groups claim. Did Blakemore bother to look at review before opining.?
  13. obeat

    Hope4mefibro conference DVDS

    http://www.alphavideoireland.com/shop/conferences/first-do-no-harm-conference-2018/ Now available from above website.
  14. obeat

    Cochrane ME/CFS GET review temporarily withdrawn

    Hopefully some of the press officers/ communication people from the charities are going to write as well?
  15. obeat

    Cochrane ME/CFS GET review temporarily withdrawn

    November 2017 we were told by the Dean of medical school that GMC wanted doctors to be trained to be less DOGMATIC and more curious.
  16. obeat

    Cochrane ME/CFS GET review temporarily withdrawn

    What were their statisticians advising? This is pretty basic . Was their advice ignored? Or have we more incompetence from presumably MRC statisticians? Are they now involved in MAGENTA and FITNET? I'm not excusing the authors, it suited their purpose.
  17. obeat

    Cochrane ME/CFS GET review temporarily withdrawn

    One of her interests is " bullying in the scientific community"
  18. obeat

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    I think they did say that the brain has become accustomed to the higher serotonin levels.
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