Search results

Dreadful experience. Started on 0.1mg, then 0.2mg. Only managed 10 days as it made me very irritable and aggressive (I'm very patient normally),t unable to sleep more than 1 hour at night.

@Hutan the timeout of 15 minutes is standard for any chronic disorder in UK, not just CFS.

"Susan O Shea is leading the organisation of the Nurses for ME branch of the education working group. The TOR (terms of reference) would be along the same lines as the CMRC education working group and Susan has done a short summary. The idea is that stakeholders are patients and healthcare...

I'll contact Nina

Dr Nina Muirhead is trying to establish NurseforME if anyone is interested.

@PhysiosforME I,have been in contact with the lead physiotherapist drafting the Covid19 rehabilitation in N Ireland, and have sent through all your stuff. He says it's been extremely useful so hoping to see the final result.

https://www.sciencealert.com/humans-used-to-sleep-in-two-shifts-maybe-we-should-again I have slept in 2 phases since I developed ME. They also advocate naps!

Is it possible that pyridostigmine could help early on in the illness, but is ineffective later?

Would it not be sensible to store longitudinal blood samples as part of Janet Scott's study? @Tom Kindlon

Does unnecessary " cognitive manipulation" also contravene the UN Convention?

@Michiel Tack Do we need to lobby our MEPs for the next vote? Will your charity be producing a template letter?

Many of us have specific times of the day when the weakness/ fatigue is worse no matter how well we are pacing, so that's another factor to consider in the pattern.

Didn't Paul Fisher identify glycolytic problems?

Chalder is now interested in Acceptance and commitment therapy, so perhaps she's planning trials of this for fatigue.

Badger shields

The Swedes take a different pathway. To Swedes, it’s the rest of the world engaging in a reckless experiment https://www.telegraph.co.uk/news/2020/04/02/swedes-rest-world-engaging-reckless-experiment/?WT.mc_id=tmgliveapp_androidshare_AvGtQ9yJ4lK5

There will be an avalanche of psychological research because it's fast, cheap and the media love the overly simplistic conclusions.

https://www.qub.ac.uk/coronavirus/related-research-activity/coronavirus-psychological-well-being-study/ I've no idea about Prof Armor research pedigree, but she did come to hear Brian Hughes at our September conference.

@adambeyoncelowe . Will publication now be delayed because of the pandemic?