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At least a lot of doctors seem to be having to change their views on ME, and recognising the multiplicity of symptoms. There are also enough doctors in the LongCovid group willing to learn from ME without assuming that they are the same.

I know you're really busy.@ Ptsafetylearning is working on information for LongCovid, can you have any input? @PhysiosforME

I was able to position the headrest directly onto the backrest. Everything is padded but you might still need additional padding. I felt no pressure anywhere probably because it tilts and reclines and these are adjustable.

I'm writing a letter of complaint/ enlightenment to Dr Pemberton. As a doctor I think it's my Hippocratic duty to educate other doctors. Adding Debbie Bogaert to the list.

LongCovid doctor " let's keep an open mind about the pathophysiology and involve patients in study" He has a lot to learn!

One of the leading LongCovid19 advocates in the UK is following @PhysiosforME so that's very reassuring.

@lunarainbows I spent 90 minutes in Karma VIP2 at hospital for tests. Extremely comfortable. I'm 157cm so my head reaches headrest ok, legs and arms are adjustable. My sister found it easy to dismantle to put in car and easy to push. Cost me £1295 but I just couldn't manage outside trips in...

Mine arrives today. Will let you know.

https://www.karmamobility.co.uk/product/vip2-transit-tilt-in-space-and-recline-wheelchair/

I wrote to our BBC NI health correspondent and UTV , so far nothing.

Hoping for mentions in Belfast Telegraph and Newsletter this week, following contacts with journalists. @Keela Too

Lots of dissatisfaction among doctors about " lifestyle medicine", various tweeter feeds.

Moderator note. This post has been split from this thread: https://www.s4me.info/threads/paul-garner-covid-19-at-14-weeks%E2%80%94phantom-speed-cameras-unknown-limits-and-harsh-penalties.15629/ _____________________ This is a survey of 640 LongCovid patients.

Response about DecodeME from leading GP in N Ireland "I really welcome this research to unpack this complex condition which impacts so many lives and which leaves those affected and those who endeavour to care for them without answers."

Presumably anyone with long-term LongCovid who meets ME criteria could be eligible?

What happens in 3 months time? "Oh you've been under/ overactive ( RCGP advice), now you need GET." Backed up with media articles by Sharp. Surely NICE needs to make a clear statement on GET? Also becoming anxious/ depressed is a NORMAL reaction to a massive life change.

@PhysiosforME Do you know if CSP has any information on PEM in its policy document on Covid19 rehabilitation? I've no energy to read the whole thing.

OI is common in multiple sclerosis, so a control group of MS patients in any ME OI trial could be interesting.

910 downloads to date. A broad mixture of healthcare professionals and 97% said that they would recommend it.

@Kalliope I had similar experiences with SSRIs ,if that's any help.