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Agree & think a positive story about new research fields opening up would gain traction & interest: lots to learn through studying ME that would open lots of doors. Also new tech to explore & data angles. Good to cover lots of different angles. I do think Ron Davis, though US, is powerful...

More info here: https://m.box.com/shared_item/https%3A%2F%2Fsussex.box.com%2Fs%2Fwn68pwgbps9fyksfx0v6quf7ud4rkdyh

Thank you all. Wise to be wary. Will keep you posted if I hear further.

Here is new research by Brighton & Sussex University Hospital & Medical School. They are recruiting people for autonomic/inflammatory research arthritisresearchuk.org/research/grant… into mechanisms of chronic pain and fatigue. Looking for patients with #Fibromyalgia or #ME or both in south...

I recently read that Dr Bansal recommended patients use B12 patches and gave Vie patches a go, which have B vits and D3 too and do think they have helped. Anecdotal, but have been doing a bit better & think they helped me shift an summer virus, when previous one have hit me hard & long.

Like lots of those already mentioned - but didn’t spot the Podcast ‘Fortunately’: Jane Garvey, Fi Glover and guests. Is a rather riotous, informal chat. Great fun & kind of feel like you’re joining them at the Broadcasting House café. Radio 4 podcast, available free on iTunes etc.

Recurrent ear infections - Otitis Externa for years with lots of antibiotic treatment. Has taken ages to get to point of no infections. Also developed an allergy (ears only) to Non-Bio washing powder & feather pillows. Have had to change to hypoallergenic pillows & detergent. Specialist...

Listening. Love the idea of exploring how the PACE authors use the English language - certainly seem to be adept at stretching words & definitions to fit. Thank you @dave30th

I have long thought that CBT should be given for behaviour and beliefs that lead to injury and so incur expensive medical costs. So ppl who ski or drive & take unnecessary risks should have CBT to adjust their thinking and ensure their health or that of others doesn’t suffer as consequence of...

I think it is so good to have had the very successful Invest In ME Conference last week & then the separate political track taking one small step forward today. Progress on all fronts is needed and to be celebrated. So few, achieving so much with very limited resources. Edited: process...

Audit Commission?

New link for donations in ££££ https://www.meaction.net/grow-our-uk-team/

Thank you!

#ME Action Network have just announced a fundraiser for a U.K. organiser. “to support another year of mass awareness, medical and scientific outreach, advocacy, and community for impact like #MillionsMissing and our parliamentary actions” Edit: Link will be added when can work out how to do...

Found link to item: https://www.channel4.com/news/chronic-fatigue-treatment-inadequate-say-campaigners

Can anyone record C4 news item? Would love to post/share on social media.

I’ve found the Wahoo Tickr Fit to be helpful: 30 Hour battery life, can set wise wrists of audio announcements & programme HR bands. Needs to be near smartphone & all info displayed & managed via App.

Sadly when introduced by the Newsreader in the 5.30pm News, said Merryn had been severely ill for 6 days, not years. Sadly, think was a misread of the script - or even thought must be a typo. Still, was important to have such a strong and personal piece on air, though wish this had never...