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  1. RuthT

    Vagus Nerve Stimulation

    Thank you @Trish you just saved me some precious time.
  2. RuthT

    The Medical Model in Mental Health (2019) Huda

    Would be interesting to find out...
  3. RuthT

    Bias in medicine - Sex and Race John Oliver

    I’ve just found it on YouTube under Last Week Tonight, so official source,and was able to watch the episode ok. Shocking and recognisable.
  4. RuthT

    News from Aotearoa/New Zealand and the Pacific Islands

    Great challenge & I have shared with some NZ friends & asks them to share too...
  5. RuthT

    ME Association guest blog: "My daughter and the pervasive dangers of PACE in paediatric M.E." by Adam Johnson

    It’s very hard to get accountability and compensation from Government policy & strategy. Really tough to see the ongoing struggle in the defined & fairly clear cut case of ppl, especially men with haemophilia, who contracted HIV/AIDs through blood transfusions from ‘cheap’ imported blood.
  6. RuthT

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    Wondering about the 1,000+ patients seen by Sir Simon Wessely. Presumably more than one consultation each & a management plan. What about a proposing a study of the impact of the treatment regime on such a consistently treated cohort: methods and results, subjective & objective? Also...
  7. RuthT

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    Gosh, the responses posted to ‘answer’ or respond to critiques of the article are very poor indeed.
  8. RuthT

    An ME patient goes on a virtual pilgrimage Ruth Lampard Church Times May 2019

    An update: I am giving a Paper at the Border and Crossings Travel Writing Conference in Leicester this week. I was asked to submit and paper & delighted to be accepted. It will be a struggle to attend as I am having a tough time at the moment, but I hope to participate as much in the whole event...
  9. RuthT

    Monitoring treatment harm in [ME/CFS]: A freedom-of-information study of National Health Service specialist, 2019, McPhee et al

    Absolutely- if you’re not looking for data, you’re not going to get any. Would be interesting to know the drop-out rates. They may be indicative of ‘something’.
  10. RuthT

    Martin's Jester Challenge against Myalgic Encephalomyelitis (OMF)

    Just to say that lots of people have supported the fundraiser & it broke the £2,500 barrier while he was resting having arrived. Hoping for a further £1,000 from his company who also gave him the time off to do it. Glad that so much has come from family & friends & I think for many the first...
  11. RuthT

    Martin's Jester Challenge against Myalgic Encephalomyelitis (OMF)

    He made it! Is very tired after 3 days & nights at sea.
  12. RuthT

    Occupational Health Conference 2019 - Talk by Emma Giblin on Chronic Fatigue Syndrome

    Talk was commended, a few slides visible. No idea of content or quality. FYI.
  13. RuthT

    Martin's Jester Challenge against Myalgic Encephalomyelitis (OMF)

    It’s a solo, sail-only challenge. Depending on wind, tide & sea conditions could take 2 days or 5+. I think it’s interesting that his progress is hugely dependent on factors outside his control, although his skill in navigation & making the best of wind, wave & tide comes into it too. Also a...
  14. RuthT

    Martin's Jester Challenge against Myalgic Encephalomyelitis (OMF)

    His fundraiser is currently at £2,359, and he has passed the Scilly Isles, headed for the long haul across the Irish Sea. The wind has dropped, so he has slowed from 11 km/h to 5km/h. He’s also probably a bit tired after a lively start with strong winds and ‘bumpy’ seas & the challenge of...
  15. RuthT

    The Stanford Daily: Stanford Medicine professor (José Montoya) fired for violating University rules of conduct (june 2019)

    I try to stay on and positively engaged, particularly when Twitter gets difficult, though try not to get embroiled in unproductive culs-de-sac. I think constructive responses are vital, but not for everyone, and I pick my timings & engagements carefully. Though am not always wise ...
  16. RuthT

    More PACE trial data released

    Huge thank you for your work @sTeamTraen
  17. RuthT

    News from Aotearoa/New Zealand and the Pacific Islands

    Hi All Just to say I’m Virtually walking the Te Araroa Trail: mapping my daily steps against the trail map. Am just out of Puketi Forest & headed for the East Coast. Tweet daily about it. I spent nearly a year in Lower Hutt in the late 80s & revisited twice, with friends there. May pop in from...
  18. RuthT

    More PACE trial data released

    So if their data & data management processes are a mess - ie not up to basic standards, surely further undermines whole original trial as unreliable.
  19. RuthT

    More PACE trial data released

    Is this verging on contempt of FOI legislation & judgment, so worth raising formally? Depending on availability of processes.
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