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It's a very gritty story but one that doesn't reach the public often enough. So some caution before reading. Not able to do a recap now, but the kid was treated abhorrently by a host of people.

Seems to be a lot of this going on, doesn't there? Introduction of post-infectious or infection-associated diseases and bringing in different specialties to research it.

Extend this to every disease and be done with the concept entirely once and for all please. Getting beyond annoyed that this has to be done for every single &@&#& disease at a time. The consequence is always that real research is delayed as @rvallee has laid out in his post and that patients...

Still has a following to this day, as treasurer of the fanclub I'm proud to say we're nearing the 50th anniversary of the generic fluffers!

Was surprised that this thread suddenly had an influx of posts. Even more surprised that Cochrane felt compelled/pressured to start up dialogue again. That said it seems as placating us more than anything so far and without further pressure I think this is what we'll be left with. Kudo's to...

Altmann speaking now.

I see it streams directly to Vimeo. Usually when someone does that with youtube it's a matter of refreshing the page and you can watch it from start to finish. https://vimeo.com/event/3140284 When I look here for example I see that EMA has done this in the past: https://vimeo.com/user109323440

Getting the pitchfork ready.

Is "Time" actually well-read? I've seen a couple of takes of them this year and they've without exception been terrible in a host of different domains.

I'm gonna wait for the study to come out. I appreciate people going to these things and giving us their accounts but this seems so muddled that it's really hard to tell what is what. I rarely get my hopes up for any specific paper so this won't be any different, can only be positively surprised...

Hope he quickly moves on to acceptance.

Was put on a stretching regime early stages of ME by a physio. I still played football at the time. 3-5 mins of stretching was more exhausting than a match of admittedly very low intensity football.

Somehow academia never strikes me as very welcoming of critical thinking. At least not these fields.

It's usually enough to put me off even going on holiday with my family, moving sounds like a nightmare. All those little routines a lot of which you don't realize you have get disrupted. Waking up groggy and trying to make breakfast not finding your stuff at first. When they were renovating the...

I've bashed no one, but if Nath has found something tangible I'd imagine there to be universal delight without the need for point-scoring. Except maybe against ze BPS-crew. There'd be so much dunking on them, hahayes.

Not exactly an endorsement of said medical research by Flottorp. More along the lines of, they have some ideas but none are proven. She also highlights mainly symptoms that they always explained psychologically. Anxiety, PTSD, depression, palpitations, exhaustion. I'm sure she has a misgiven...

Yep, didn't find anything yet, call of the search.

I'm not seeing how that one stands out.

Got nothing to add at the moment, just that it's great that your son is showing an interest @Lidia Thompson. The more people that are well informed and able to challenge these narratives, the better.

So if they'd spend a couple billions to get us fully healthy it'd actually be a great return on investment, fiscally speaking...