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@Hutan “Mike Snyder was saying the same things. His team have found that an increased resting heart rate can be an early warning of episodes of acute illness. He's interested in how that might work in chronic illness too. He's doing a study (not specific to ME/CFS) with people wearing wearable...

Great title - “Off the Pace and not Nice-Challenges with Evidence in Me/CFS”.

Also interested in David Systrom’s talk. Did he come over to UK especially for this presentation? Hope that Nice looks at all of these. Once again thank you to the organisers.

Hillary Johnson’s ( Osler’s Web) and others’ tweets about this. I am not able to read this morning, only scan, but others might be interested. Eta: sp

Thanks @2kidswithME. That sounds good. If necessary I can sit on a chair with my legs up on my wheelchair if there is room. I sat like that this afternoon- wheelchair seat for legs is more comfortable than a hard chair.

Mr B and I have registered and hope to be there. Will be at my limit, about an hour and a quarter by car driven by Mr B, so fingers crossed there is no pem or other appointments around beforehand or that will destroy the plan. Have booked hotel room so I can rest during the talk( if necessary)...

http://www.virology.ws/2019/08/31/trial-by-error-lead-author-of-cochranes-new-bias-guideline-is-lp-study-co-author/?fbclid=IwAR2P_p6V-IkkVXHSdGlPY6eRLzWlwmebmaJvuWbjqdSNZbAr7UdCFZJzNw4

Me too @Trish and @ladycatlover. @John Mac ’s suggestion sounds plausible.