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"Isolated anti-SS-B is not likely to have diagnostic and prognostic value and should not be used to assess autoimmune diseases." ( link above) Thank you @Evergreen.

I voted " no - I have never been tested". However, when I was 29, I had a positive Shirmer's test at an eye hospital and was prescribed artificial tears which I still use at 78. My dentist says I have a dry mouth. Some years later I had anti SSB antibodies diagnosed and a positive ANA. I don't...

22 days to go £10,745 donated of £15,000 stretch target from 297 pledges

I have just scanned this quickly. The only conclusion I have reached is that if I were to do this thoroughly with proper thought, I would crash myself for a week at least. Maybe I am getting worse or ageing is having an effect but I have begun to be more protective of my energy. I spend energy...

Thanks @ukxmrv. Sorry your vaccine effects persist. It's unfortunate that there hasn't always been sufficient support for those who have been adversely affected. Difficulties in using the internet must be a real nuisance.

I am booked in for my flu vaccine in October. I won't have a covid vaccine because of the severe adverse reaction I had to my third v and the advice to my GP from the A and E unit that treated me that I should not have another one for fear of a fatality. We had thought Mr B was fine with...

As a non lawyer, I wonder if this procedure is being followed as a strategy to show that all options are being considered to resolve the dispute without court action, for example "we hope the DHSC will make the changes needed sooner. The changes needed are not huge, they are efficient, and...

I looked up more about the current step " letter before claim". I don't know if it is a required step in the proposed ' Justice for ME' campaign but there are other key purposes listed in the AI overview below eg create a record. AI Overview A letter before claim (LBC), also known as a...

I still feel confused. The nature of the required changes to services for pwme seems to have altered The description in the early statement said Now from update 3 These are very different. I agree with @Cinders that minimal changes in the light of the history of services for pwme are...

Things are going to have to move pretty quickly if Judicial Review has to be applied for before 21 st Oct at latest, if the reply from the DHSC is unsatisfactory. Can a reply from the DHSC be relied on before that date? How many working days are the DHSC allowed in which to send a reply? What...

19 hours to go £10,080 Update 3 #JusticeforME Sept. 26, 2025 KC advice recieved and - thanks to you - instructions given We have now taken legal advice, thanks to your donations, and instructed our lawyers to proceed with sending a letter before claim to the Department of Health and Social...

@Evergreen. Sounds a great, carefully thought out project. If it were me, I would prefer a kerb just so that I would know I was safe even if I lost concentration or something interesting caught my eye. Some days you may be tireder than others. Having kerbs makes it fail safe. I would relax...

That is a terrible position to be in @BrightCandle but I understand that the experiences severe patients have undergone have led you to decide that. It seems to me really important that this view should be heard, that you feel the NHS is unsafe for the very severe and you don't want to engage...

#There for ME has published a lengthy article this morning on their substack focussing on work they have been doing on the needs of the very severe. The article below is from their mailing list Headings and conclusion. For full report see https://substack.com/@karenlhargrave ( added). Our...

I have donated but agree that I would like more clarity about this campaign. I am hoping that more will be clear when the next update is published. Update 2 said "Our next update will be on case(s) progress. Meanwhile, a couple of details on the campaign. Thanks to everyone who let us know...

6 days to go £9,000 donated of £15,000 stretch target from 249 pledges

NHS care for ME now by #JusticeforME Legal campaign Lawyers: Rook Irwin Sweeney LLP United Kingdom #JusticeforME Case Owner Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness. £8614...

Update 2 #JusticeforME https://www.crowdjustice.com/case/justice4me/ £8398 raised Sept. 8, 2025 Keep on sharing, please keep on giving We are over halfway to our stretch target, thank you for these donations!! Our next update will be on case(s) progress. Meanwhile, a couple of details on...

Thanks @Sasha. Despite resting all week, I didn't manage the non local appointment but was able to postpone. More resting.

22 days to go £8,103 donated of £15,000 stretch target from 222 pledges