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I wonder if they asked the speakers. There is considerable interest in post acute infections currently not least because of covid, and Decode has recently reported so it would have made sense both to publicise this further and record the day. It's also titled a showcase event which implies that...

The fact that they are not planning to record the day also suggests that this is seen as low priority.

@Jonathan Edwards - thank you. I have been looking through that site and see that registration ended on Nov 2nd so it seems too late to register now. I should have been more on the ball. Don't quite know why I wasn't except that the restricted numbers was a concern. Does anyone know if they...

Is there a link to the Eventbrite site to try an d register for online place? Early discussion said there were only limited numbers available. Is it worth trying now? edit: Eventbrite link online is still stating that there are only 50 virtual places. Anyone know any more. I hope people here...

I wrote to my new MP, Libdem Paul Kohler, asking him to sign the EDM. He has signed and there are 55 signatures in total, mostly Libdem but a few others as well.

Me too. I haven't seen any studies looking at those who have transitioned and whether they can maintain good results on Wegovy after being on Mounjaro. My GP has told me that around Xmas there should be more weight loss drugs being released. I know Eli Lilly have another drug in preparation...

There isn't always a HBOT chamber close by. I live in a relatively high density population area and still, the nearest one is 20 miles away. It is heavily used by MS patients but they put my name as a patient with ME on their waiting list. I never heard further. Now, that is too far because I...

As am I. There is an implication of shortage of something and that fits perfectly with experiencing a lack of energy. Life is making repeated choices between activities ( in the broadest sense ) because they can't all be attended to. My energy is not sufficient to do all that: choices need to be...

@ClareGerada Follow I'm deeply moved to have been appointed to House of Lords. The NHS has shaped my life, work, & values. it's where I learned what care, compassion, & public service truly mean. I hope to carry that spirit forward in this new role, speaking up for patients & health...

Had my flu vaccination yesterday pm. No noticeable response at all. So easy. Done by my GP at surgery. He knows all the reactions I had to covid vaccine and was wise enough not to raise them. He did say something about I was having the over 65 vaccine. Anyone know about this? edit: Flu jab...

Update- non vaccine reaction! Was probably a good thing not to have had my flu jab yesterday because I started to feel unwell yesterday afternoon. Today glands are up and mild sore throat. Nothing like my vaccine reactions but now concerned I won't be well enough to be vaccinated on Tuesday...

Thank you for your efforts.

Yes. I was suggesting that a letter could be sent to the campaign #JusticeforME c/o their lawyers if this is possible, not any communication with the lawyers, if anyone wanted to do this.

Or via their lawyers Rook, Irwin, Sweeney.

Thank you @Kitty.

Today, 18th October The campaign has met its target within the last 2 hours. Donations include one from a grandmother wanting " to give young people hope." Legal campaign NHS care for ME now by #JusticeforME 10 days to go £15,100 donated of £15,000 stretch target from 455 pledges

I attended my GP surgery fully masked this morning for my flu vaccine. Very efficiently run. They were getting to the end of vaccinating 600 people. When the nurse asked me if I had reacted to a vaccine, I felt overwhelmed and couldn't go ahead. I was plain terrified. I am seeing the GP who has...

On 18th October 10 days to go £14,765 donated of £15,000 stretch target from 446 pledges A lot of movement since yesterday's figures. An extra 96 donations and money raised is within just over £200 of target with 10 days to go. The rise in donations seems to represent a significant interest...

https://www.crowdjustice.com/case/justice4me/ Case update no 4 Oct. 14, 2025 "7 days to go to Judicial Review deadline! This campaign has been outstanding because it belongs to pwME (people with ME) and NOBODY else. This is evident from the donations data - which you probably cannot see but...

An interesting point. George summarises his work as showing interest in the neglected things which is exactly what ME is, though ME wasn't discussed. We have been so neglected to our huge detriment. Thank you George for shining a light.