Search results

The link was broken. A further tweet was posted.

This one @NelliePledge ? https://meassociation.org.uk/wp-content/uploads/Parliamentary-Briefing-on-M.E.-for-Backbench-Debate-18.01.19.pdf @CRG @FMMM1

Our group now has regular meetings with Alex Chalk on local and National matters. We will continue to encourage him to (urgently) press the Health Secretary for “ring fenced biomedical research commensurate with disease impact” and also for research studies to include both ME and Long Covid...

Rory Palmer still very supportive of PwME on Twitter and shared when Evelien (@Michiel Tack ) last spoke at the European Parliament (December 2021).

[NB ^^ Alex Chalk, not Jones] 1. I very much like all of @CRG ’s questions a) - d) 2. Agreed. A Bristol MP may risk censure from some constituents who are employed by Bristol University. Would Darren also still be considered to be in a marginal seat? I am sure @ringding (my fellow Admin) can...

Try to make some time for yourself too @Natalie ? My heart goes out to all of you in the same situation, ensuring that your offspring continue to be kept safe & well away from COVID-19. Best wishes x

Watch out UK members, Cambridgeshire Live published an article 24 February 2022 https://www.cambridge-news.co.uk/news/uk-world-news/chronic-fatigue-syndrome-symptoms-signs-23202193#comments-wrapper written by Sophie ChristianSEO/trends writer Jessica Knibbs (12:09, 24 FEB 2022) I have...

Can you ask the authors/The Lancet for a public apology @Jonathan Edwards ?

In a slightly flippant response, and given your name @Fainbrog (it’s a shame we never think of a suitable response quickly enough), a quick: “Sorry, I suffer with constantly severe cognitive dysfunction, so I can’t remember where I am in a conversation, what I have said so far and what I want...

See ME Association post (and following comments - ‘still not perfect, but, an improvement’). A complaint was made to the Express by ForwardME, using the new NICE Guideline.

:emoji_clap::emoji_clap::emoji_clap: Excellent letter, thank you @Robert 1973 Very early days on this next part, but our MP has been involved and supportive of PwM.E. since the debates of 2018. We have insisted that M.E. requires ringfenced funding* of biomedical research, commensurate with...

Have you checked spam @MeSci ? Someone else found the email in there

Denigrating acronym, yet again, as a quick check of an online dictionary confirmed my thought that the only words close to 'PIF' is 'piffle' or 'piffling' meaning nonsense, trivial, unimportant. Screams gaslighting again. Thank you Emma, you are a star! So this begs the question: how are...

“illness perceptions”? why use these words, just why???? :banghead: NOTE: I have never personally been affected by Endometriosis, but I know a lot of women who have/are and I have empathy !

If any other ME/Fibro groups wish to join the discussions, please email ME Local Network: melocalnetwork@gmail.com

Asked whether this actually has a formal medical coding yet. Hope Long Covid Community recognises the dangers.

@Willow my “auto fill” understood Danish better than me and added my town/city into the “By” box.

Thank you @Anders_Vang for the back story. I thought we “had it bad” in the UK but I am so sorry to read all this. We knew it was an uphill battle in Denmark, because on Karina’s “experience”. Solidarity with our Danish friends - I will be sharing the petition on #MEAwarenessHour tonight :hug:

Tweeted

Signed. I found it very easy to have Danish and English translation open in 2 windows and swop between to complete my details. U.K. is “Storbritannien”, when on the drop down menu. Please confirm your signature from the email - see bold wording saying Yes: …din underskrift. Ja, jeg har...