Search results

I have emailed @Russell Fleming and Dr Charles Shepherd today, to ensure that the ME Association is made aware of the wording in this advertisement.

Excellent @InitialConditions I added some back up info and the additional thought about how Sajid Javid has declined to consider the request for a national reporting system because 'NICE no longer recommends CBT/GET' :banghead:

Have you been able to send this good spot to the ME Association @Sly Saint ? They have done a very swift response to the East Kent Hospitals physio’s “advice” Please shout if you are unable to do this, I am happy to use your post above (if that is ok with you) to email people at MEA, if you...

I represent our local ME support group at one of the County’s Partnership Boards [e.g.https://www.gloucestershire.gov.uk/health-and-social-care/disabilities/partnership-boards/] I learned today that the Health & Care NHS Foundation Trust has a “NICE Guidance Manager”. They are responsible for...

Agreed @Amw66 Messaged “Lizzy H” with helpful details

I have DM’d Peter, via Twitter, to alert him

Article written by Sean O’Neill of The Times and I was able to read it, in full, from his own tweet:

I read Dr Asad’s tweet but was unable to even view what he was commenting on because I, too, am blocked. I have never had any interactions with Prof G, but I have ‘ME’ in my twitter name I decided not to read the thread further a couple of days ago, but glad to just see what it was all about...

Unfortunately, I have seen requests for funds from 3 different M.E. places in this last month. I gave a little to each, because they were all worthwhile. If spaced out a bit more, I may have been able to give more.

Excellent idea @Wyva , good luck with your project: Warm greetings to people with ME/CFS, their families and friends, in Hungary. Before the pandemic, I was a participant for the U.K. ME/CFS Biobank, which provides blood samples for international biomedical studies into ME/CFS. I have seen...

Retweeted to hopefully help @Keith Geraghty reach his target.

Copy your blog here too please so we spot and share/RT please @Caroline Struthers ?

New blog: “Psychologising Long-Covid and Anything Else” http://www.cbtwatch.com/ A letter has been written by Dr Mike Scott and @Joan Crawford and appears in the May edition of The Psychologist

2001 - my diagnosis was Post Viral Fatigue Syndrome (PVFS), following a sudden onset viral infection Improvements, and a recovery of sorts was made over 5 years. But I never returned to 100% pre infection health. 2013 - following ‘relapse’, caused by Sepsis, my GP has only ever referred to cfs...

……if they refuse to publish it….. In which case, if you would like @Caroline Struthers, I am sure that some influential social media people would be more than happy to post your letter publically and ask (tag) “HealthSense” to explain a) why you have not been given the courtesy of a response...

Dr Asad Khan (14.5K followers on twitter) is on the case @Trish !

I cannot bear to read whatever he writes :banghead: I just remember all the advice and support he was given by PwME on twitter when he first caught Covid As a person who has had both a (7 month housebound) post viral experience, ‘recovered’ to 90-95%, and, 12 years later, sepsis onset M.E., I...

Also remembering that ‘end of March’ we hopefully have some news from the PSP?

Dr Ranj was on BBC Live today. He is still struggling with brainfog.