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Will this information be given to the debate on the PACE trial? Unum > bio-psychosocial > PACE 'Malingering and Illness Deception' !!! I just wish my M.E. brain worked sufficiently well enough these days to think up these 'brilliant deceptions' that they think we have created

Thank you for telling me of your experiences. Exactly. I requested the stop because I was in so much discomfort. Talk about wanting to be in control, my body was telling me to stop. I realise now that I shouldn't have even wriggled my toes (which I had started to do, right near the start of...

Shared as a tweet......may reach a few more

I suspect that would really cause problems with Mum's legal rights. But I understand your thinking. Missing Millions, indeed. Perhaps Tymes Trust, Dr Speight would know? See Dr Myhill's complaint to GMC too. We all (adults and children) need GP's with some old fashioned common sense. Edit...

Why is there not a "Really Like" button?!

Many more PwME have commented on @Tom Kindlon 's FB page today, some with similar stories of harm done to themselves or their children

2,950 and done some sharing today...... Need to get it moving faster again!

From the Stakeholders meeting of NICE:- So, my experience from 2017. I asked my GP to refer me for a tilt table test as I have had varying symptoms when standing, climbing stairs, any uphill walk (not exactly hills, you understand, but we do live on a slope and I do walk a slow dog and...

Very interested in this topic of "OI in PwME" (from recent experience) but will take it away to another thread in Symptoms....... somehow .......may need techie help.......please?! Edit - ohhh, managing the tech stuff, slowly......

Think NICE Comms are more than aware of our issues with GET/CBT. More and more 'talk' taking place publically and we are all trying to add our bit by RT, sharing on FB, adding info. Thank you to all members who attended and are reporting in. Rest well, ready for the next stage.

Will PM you. Excellent letter Graham, as someone whose 2 brain cells are always struggling, thank you for your time & energy in composing the letter.

I have been following the Committee for Works & Pensions "Inquiry" into the assessments, having supplied 2 pieces of evidence to them. The Committee have heard evidence at 3 oral evidence sessions so far and next Wednesday 20 Dec 2017 9.30, there should be an interesting one when the following...

Great letter Carly. I think we would all be interested in any response you get. I will retweet above posts.

If people feel so inclined, the biobank would also be very grateful for one off or regular contributions http://cureme.lshtm.ac.uk/donate-to-cureme/ (Hope that's ok to post?)

UNREST, the Sundance award-winning documentary about ME, the most common disease you've never seen, is coming to Cheltenham on Monday 11 and Tuesday 12 December. Following the screening there will be Q&A with the documentary's producer, Lindsey Dryden, Lecturer in Film Production at the...

Yesterday before the budget (which I ignored) the Work & Pensions Committee interviewed "claimants" in receipt of PIP and/or ESA (UK benefits), followed by advocates working for charities/CAB who assist claimants with their applications. Interesting watch although very long. Frank Field...

@Luther Blissett Now I have to bookmark these instructions for future use! Thank you. Edit - Happy grin, when something works......

@Luther Blissett, I've had a look at the 'Help and how to' page but can't see how to do your little spoiler box with the comment inside . Only very highly trained and brain alert peoples allowed?!?!?!

Eventually found my entry at November 08, 2017 at 04:38 PM, not brilliant but did make improvements with my 'written' one. Would love to be able to hold a thought and write it coherently. Very good report written by a former DWP employee - worth a read. (page 33 at the moment) Simon Gardner...

That's it for today. Converted my doc into word (on iPad - yuck, can't cope with tech for long these days) and sent now as written evidence. Hope our efforts bring about changes to horrific WCA.