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My thoughts are that if these figures “ allows high-quality clinical research funded by charities, research funders and life-sciences industry to be undertaken throughout the National Health Service.” “ .....The funding for this research came from a combination of the NIHR, the Medical Research...

@Trish Is it easier to read from the MEA post? http://www.meassociation.org.uk/2018/05/monaghan-pmq-research-funding-23-may-2018/

Cross reference to page 7 current House of Lords/House of Commons Questions raised (Sorry, not technically able this am to link ) 14.5.2018 WPQ was asked and 22.5.18 Reply recd from Caroline Dinenage and “it is not usual practice to ring fence funds....”...

@MeSci , also noted the “not usual practice to ring fence funds.....” compared to our discussions in https://www.s4me.info/threads/uk-funding-doubled-for-brain-cancer-research.4144/

Reply received and Alex notified us (3 who met him together) by email this afternoon. Answered by: Caroline Dinenage Answered on: 22 May 2018 The Department National Institute for Health Research (NIHR) recognises that chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis...

@MeSci I really like all of Carol Monaghan’s questions!

A quick update on what Alex Chalk (Cheltenham) has done relating to M.E. in the last few days. 1) His fortnightly newsletter (#43) dated 14.5.2018 stated “Had a meeting with Carol Monaghan MP (SNP) to discuss cooperation in their joint efforts to improve treatment of ME/CFS” 2) On 14.5.2018...

Does this work? I had to copy & paste to a document in order to get the access issue sorted. https://1drv.ms/w/s!AgKnW-IOXzWAdq1257ZgB2GxsoM

Three constituents from our local support group visited Alex Chalk MP (Cons) in April - Copy from part of an email reply from the MP:- “I really enjoyed our meeting. It was very valuable. There’s nothing quite like meeting properly face-to-face; you feel the full impact of the lives that have...

Thank you for reassuring me. Woke with pins and needles in my hand, now hands. Extra emotional as son goes abroad volunteering, flies tonight. A symptom I had forgotten about but comes back like a bad penny.

I like to follow all OI threads. Good luck with your neurology appointment(s) - are you in the UK? Just for your information, my experience of tilt table test, see https://www.s4me.info/threads/orthostatic-intolerance-in-pwme-pots-nmh.1976/ I really hope you have a better experience than I did.

Exactly, I now have a Consultant’s report on my file which says that I have “no problem” !

3 of us from our local M.E. Friendship group have an appt to see our MP in a couple of weeks, following a letter we sent for us all. We are hoping for support as he is on the APPG for Lyme Disease, so have tried to link in with the number of mis diagnoses of the one illness to the other. Quite...

One such quote from Prof Malcolm Hooper: “Discrediting Chronic Fatigue Syndrome A 2013 paper by Malcolm Hooper, Emeritus Professor of Medicinal Chemistry, University of Sunderland, UK, reported evidence that SMC promoted the views of certain psychiatrists while ignoring other evidence that...

I agree with you @Barry. My post was just to show that his name appears as one of the original members of the Scientific Advisory Board for SMC, I did not intend for anyone to read anything else into it.

http://powerbase.info/index.php/Science_Media_Centre Contains information regarding the set up of the SMC. Ever heard of Powerbase? (Public Interest Investigations......interesting?!)

According to http://powerbase.info/index.php/Science_Media_Centre the SMC was founded in April 2002 and SW was one of the original members of the Scientific Advisory Board. I will also paste the above link onto Barry’s thread below, for any further discussion.

Sorry to confuse. I think Sarah attached it as possible background reading for MP’s who may not understand why we need a debate on the PACE trial.

Our local M.E. group wanted to contact the MP’s in our County (5 Cons, 1 Lab). We have members from 5 of the constituencies and the first letter has been prepared and was sent on Friday 16.3.18. 3 of us hope to visit our MP within the next month for added impact. Sarah Reed from ME Action...

Hi @Tilly Welcome. Friendly bunch here with some familiar faces!! xx