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I agree, but also worth noting that the placebo wasn’t a dummy pill in this study: it was 500ml IV saline, this could conceivably provide some temporary symptom relief in volume depleted patients, a condition that has been shown to occur frequently in pwME. I wonder if, on observing this, some...

Haha! Wonko, no!... I don’t think that’s quite true. They’re not sadists trying to inflict pain on vulnerable individuals. The problem is they don’t think about anyone other than themselves. It’s all a bit me, me, me and not enough M.E. The charges are that they’re egotistical...

If what this patient says is correct and they were diagnosed with a new onset EBV, what is known as glandular fever in the UK or mononucleosis in the USA, this can be very severe in adults and cause a post viral fatigue sydrome lasting several months. When or if this transitions into ME/CFS is...

If you register I think you can view two free articles a week. Or, sometimes the ME Association reprints a full copy of newspaper articles on their website.

https://newscommercial.co.uk/brands/the-sunday-times/style I guess 'Style' is predominantly a magazine marketed at women, although, apparently, 40% of the readership are men.

https://www.telegraph.co.uk/science/2019/03/22/single-course-antibiotics-may-cause-irreversible-damage-crucial/ The rest is behind a paywall, but, if you register, you can read one or two articles a month for free.

I don't think he said it directly... From @Lucibee's transcript, this is what Sharpe said: "These journals – journals like Health Psychology – are at liberty to publish campaigns against the treatment – because that’s effectively what it was – but it’s very important that science takes its...

Yeah, I feel the same. Wessely's tweets seemed boarderline incomprehensible on first reading. "It's about the cap badge of the interventions and researchers." Is that why patients with peptic ulcers, MS, Parkinson's disease, Diabetes, Tuberculosis, etc. no longer congregate to psychiatry...

I don't have sight of the phase III rituximab trial data, but I thought what was remarkable about the early work was that when patient reported improvement occurred, it had a distinct pattern to it, that, to me, suggested something more than a simple placebo effect was going on in a subgroup of...

Thanks info. I agree these sorts of activity diaries and so on are incredibly tedious to plan and keep. Are we saying that there was more homework (more work) involved in the APT group, than CBT or GET?... I wouldn't have expected that, that would be another twist, haha.

Well said. And on what I think is a related point, I believe we used to have more specialist/ consultant grade 'general physicians' to whom primary care GPs could refer complex chronic disease cases, like ME/CFS. That might help.

I was wondering if it would be worth lodging a complaint with the Independent Press Standards Organisation, this is the new regulatory body that replaced the Press Complaints Commission in 2014. However, apparently they only regulate press organisations that are members, and, inconveniently, I...

I think the RBC deformability might need to be considered separately, as the “there’s something in the blood” theory still applies where plasma alone has been added to healthy cells, and found to diminish their ability to utilise oxygen.

I had a listen this morning. I think she means well but is overly dogmatic. Anyway, I just wanted to pick up on one or two things. One was where she was taking about Norman Booth, co-author on her mitochondria papers, she seemed to be speaking about him in the present tense but, sadly, he...

https://www.epsom-sthelier.nhs.uk/download.cfm?doc=docm93jijm4n9647.pdf&ver=23810 At the top of page 2.

"Medical investigations show that there is no disease cause for these physical symptoms, they occur as a direct result of inactivity and prolonged rest." Wow...! That's a bit much isn't it?! Where is the evidence for that statement? Or, are they allowed to say whatever they want... is there...

Oh dear, this isn’t good news at all... Bless Dr Bansal, he was a good man who helped put my GP on the right footing. I heard he will now be focusing on his research interests. As you say, the new appointment is very revealing about how the powers that be perceive ME/CFS, or there were no...

So, if I understand correctly, and as others here have alluded to: 1. The mitochondria themselves aren't broken: good. These researchers took the lid off the mitochondria and tested out the machinery and found it all to be operating normally. 2. Yet, mitochondrial function in whole cells is...

Absolutely, and a similar experiment has been repeated by Dr Karl Morten, as briefly reported by the ME Assocation, here.

Hmm, eligibility requirements: Tick, tick! :thumbsup::thumbsup: Does anybody know if this trial is open to people from the UK??! 6 month holiday on the Sunshine coast...! I'm in too, haha! :rolleyes: