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I have had to grapple with hypersensitivity in relation to digestion. I am not even severe but have still observed ridiculous hypersensitivity to some bacterial products for example. So much so that I have to wash celery & lettuce in detergent with a sponge ensuring full contact and abrasion of...

If I was a betting man I would bet good money that this is based on a counterspin briefing from the "SMC". It sounds just like Wessely arguing he is the victim of harassment, when debunked for selling snake oil. The SMC has been busy lately too, lobbying for fossil fuel I noticed. A woman died...

Yes half the questions make no sense to me. But assuming a new administration would read it and feel more empathy I gave some of the questions my best shot in wordpad over a few days and submitted by copy+paste earlier today. In fact I was able to drag and drop selected text from wordpad to...

I am familiar with runner's endorphin high from combining rowing training runs with zazen I first learned at Japanese temple kung fu (Shorinji Kempo) martial arts classes before ME onset. I would distinguish that from the adrenalin rush I sometimes get out of the blue since ME started which is...

I just let them run their course, maybe take a dose of magnesium (as bisglycinate) to help calm euphoria, if my head gets really crazy a measure of alcohol to act as a depressant, which can sometimes help stop febrile mentation, though the rest of the time I dont drink as a rule. It may sound a...

Yes, ethics can pose inconvenient dilemmas. Goodness knows as a human being I have made enough mistakes myself, which is why I conclude one has to make it a rule to face up to ethical issues and respond constructively rather than ignore them. To which end it helps to discuss and debate and...

Encouraging PWME to deliberately exercise in order to get PEM does not seem ethical.

In an attempt to discuss the impact of sensory hypersensitivity and PEM in ME, I can only speak for myself but for me there are two types of PEM. One is immediate and the other is delayed by 24 hours, to the hour usually suggesting a link to circadian rhythms. Severity fluctuates for me so...

Interestingly news media are saying there is a new COVID variant and waves of infection rising this summer. Stay at home plea issued over new Covid wave as hospital admissions rise https://www.chroniclelive.co.uk/news/uk-news/stay-home-plea-issued-over-29450430 Expert's warning as hay fever...

Thanks for the explanation paper @Murph which is interesting from a zoological perspective, having studied evolution, it attracts my critical eye as follows! Re: "The Expanding Role of Extracellular Traps in Inflammation and Autoimmunity: The New Players in Casting Dark Webs" Huang SU...

Update on the update, the recovery phase has settled into a longer than usual period without migraines. I did get PEM after driving 1mile to post my postal ballot and then being intercepted for chats by both my neighbours which is unusual to say the least as I usually chat to them around once a...

I guess this is Emily's page. https://www.emilylimrogers.com/ Is that actual sympathy for the plight of PWME? Its hard to tell with the mind boggling sentence structures plus the legacy of paranoia, since one is so used to being love bombed and gaslit by BPS proxies trying to upend common...

OK this is probably the best place to add this, I want to log recently observed phemonena. I may blog it later if it would be potentially useful for others. Writing and discussing here helps think about that. Bottom line, recently had two weeks of heavy phantosmia following a strange relatively...

Aaaaah! Penny drops. Taurine for Mg, lysine for Ca. Very interesting. I desisted with taurine because I noticed headache spikes after taking it. But if that was because it was helping Mg out of the blood and into cells it would raise relative Ca in plasma, which I know makes my headaches worse...

It was recommended by Dr Paul Cheney for that kind of thing @Mij I have always had some around since then and just put it in a drink if I feel I need to. What I have found with longcovid is taurine had minimal effect but lysine on the other hand, taken with NAC, has a significant impact on...

Sabine Hossenfelder recently made one of her shorts about her personal disillusionment with academia and why she quit for a career on YouTube. It is very telling and I am afraid it points to an academic career mill which leads to papers for the sake of papers which is apparent to me reading the...

This reminds me of the late Dr Paul Cheney's observations and theories re: poor oxygen desaturation in the blood of PWME which he ascribed to a pH imbalance created by intracellular proton production in atypical respiration metabolism causing blood alkalosis as the body's homeostatic systems...

I am glad they could find things which helped and heartened to see better medical care for people with Down's syndrome. It seems to me an important breakthrough. I cant help comparing it with ME. One similarity is how, before they found something to help (IVIg etc), people were dismissive and...

Reads more like an advert than an experiment. Seems even more dodgy when you consider the FDA do not approve. https://www.fda.gov.ph/fda-advisory-no-2020-1343-public-health-warning-against-the-purchase-and-use-of-the-following-unregistered-drug-products/

They appear to have used the open access metabolomics data from the following paper which used 1994 Fukuda definition for ME/CFS. "Prospective Biomarkers from Plasma Metabolomics of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Implicate Redox Imbalance in Disease Symptomatology"...