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Just logging this article (courtesy Dr Fluks' newsfeed) which rationally discusses the problem of misdiagnosing ME/CFS as depression. Thought it deserved to be known about and discussed so others can analyse its strengths and weaknesses in finer detail. I thought it gave a realistic overview...

Outrage relates to a sense of justice in the face of injustice, an assumption of rightness, that one is justified in protesting and a belief, a sense of trust, that all right minded people would agree protest was justified if they knew the facts. Which is why it makes sense to express them and...

There is stuff to unpick here. This study is based on recorded clinical symptoms, presumably diagnosed by attending clinicians and reported by patients. Not laboratory level empiricism but nevertheless potentially informative. What strikes me about this is people already taking OAC are...

I would like it if I could sleep in but my sleep timings are easily upset by any cognitive events which involve planning, like deliveries etc which also includes changing the clocks. Unfortunately everyone in the world insists on reminding me the clocks are changing. So this morning, after I...

Twice every year I am forced to shift my circadian rhythm an hour and it messes me up for a week every time. I have finally written to my MP to ask her if anything can be done to stop this anachronism and took a moment to help her understand ME/CFS a bit better and why this is a particular bug...

IMHO We seem to know hardly anything about our own minds and still less about how to provide good advice to each other. This is one of the reasons I studied animal behaviour and its evolution, to get a good perspective on the basis of human nature, especially my own, since that is the lens...

I think there is a parallel with ME management. To rehearse the argument, it is generally accepted that exercise is good for people. One exception being ME/CFS patients for whom exercise can cause PEM (post exertion malaise) and can cause more severe crashes and relapses possibly including...

Why indeed? Let's assume they dont. My point is from a science perspective there are pro and anti lobbies which have no science basis, of which the reader should be aware. I am cautioning it would not make sense to throw the baby out with the bath water by jumping to conclusions which blame...

This is a science forum. Both pro and anti mind training lobbies exist but I get the feeling neither are motivated by science and this Dark Side narrative, besides being journalistic sensationalism, is based on publications with a suspicious bias and intrinsic illogic which serve the anti lobby...

I means you can trust them to consider the impact of their work on ME patients with humane sympathy, Prof Jason being one himself. This is in contrast to some psychologists who practice academic careerist approaches and dont care who it hurts as long as they get the money.

One glance at the authors (Leonard Jason) and you can predict from past publications that this paper is likely to be based on a conscientious approach and it is no surpise at all to discover it is. In examining biases in ME diagnosis it demonstrates the lack of precision involved in ME diagnosis...

I wrote to my MP again. Pointed out why we need to know more about ME to help with the post covid lockdown benefits crisis.

Thanks, also for passing on your discoveries, as those things are worth knowing. It is very helpful to know about the 30 day time limit, meaning it is best not to register immediately. SDP is likewise part of my ESA, so fingers crossed that will transfer as you say and allow a lower...

Thanks for your good advice JBK, I am trying to relax and not to get too overwhelmed by it. I am subbed with Benefits & Work so no problem there and I have found the ESA>UC migration guide which I will read in due course. Takes a while to adjust and get my head in the right space. Plenty of...

Good luck @MrMagoo . I "need to claim Universal Credit " apparently, letter just arrived today. Am still trying to understand it all but the problem I see is the support group like minimum commitment is still too much as I am housebound and they are talking about visiting a job centre which...

Well I feel for them, as a video it is nicely shot and edited, credit to Grant Wakefield. Tells Rosie's story respectfully, as well as her father's and having had ME CFIDS for 38 years now, I feel for them both. Dr Ziyad Al-Aly was very knowledgeable, realistic and interesting, especially on...

I have always taken the approach that other people start from a place of unknowing regarding ME, just as I did and its my job to lead them through the experiences I have had to help them understand at a practical level why I have to be the way I am. This has always worked for me. I have...

For me the video was spot on. They got the salient facts about PEM right which it goes without saying is a nightmare. Still recovering from cooking and freezing yesterday. I have had lots of problems with inflammation symptoms as part of my post-EBV ME/CFIDS. I have not measured blood oxygen...

Update. Hop tea is something else which seems to help reduce heart arrhythmia (HA). More food diary detective work. I noticed a day whan I had less HA and looked at the food I had that day and the day before. Tested each one individually and it seemed that Heineken 0% was the key factor which...

Update, I managed to get away from migraine bouts by a regime of linseed oil, turmeric and lysine supplements. So naturally Murphy's lawyers made sure I caught another virus which causes worse brain fog, asthma, sneezing, runny nose, constipation and heart arrhythmia as well as weaker than...