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I dont agree obviously. If I had an official capacity then that would be cause for recusing myself but this is a discussion forum and I am here to discuss. The correct and ethical thing to do is declare my interest honestly and then share my opinion as cogently as I may and let others decide...

Personally I think it is placebo and will tell anyone who wants to know. Been there done that, which is up there with faith healing and whatnot. My mum though always told me never to use my intellect to undermine other people's belief systems if they make them happy, take it up with her. She was...

OK I should declare my interest here as Dr Myhill supplies my medical evidence for PIP so I have an interest in viewing her as benign and maintaining a trusting doctor patient relationship. In my experience Dr Myhill has always been highly ethical and particularly careful about respecting her...

I like to think she was advising people about correct dosage and how to use it responsibly, if they so choose. Not that I would. This is very similar to water chlorination using chlorine dioxide, which is used for raw water treatment in the UK. This is probably the source of the unconscious...

What can I say? 'Twas ever thus, ME/CFS MRI studies have been typically underpowered since forever. I wait for DecodeME with fingers crossed. "A systematic review of neurological impairments in myalgic encephalomyelitis/ chronic fatigue syndrome using neuroimaging techniques." S...

There have been a lot of findings regarding changes in brain and brain stem morphology in ME/CFS. Voxel morphometry is, as I understand it, an empirical metric. Rather than list them all here I prefer to cut out the middle man and include a link to google scholar for "voxel morphometry ME/CFS"...

Nancy Klimas has spent many years looking at cytokines in relation to ME/CFS. One of her papers seems relevant so I thought I would add it to the thread. "Poor sleep quality is associated with greater circulating pro-inflammatory cytokines and severity and frequency of chronic fatigue...

I appreciate we should not get hyped about interim research findings, I am not, just so ticked off with rigors I decided it was time to take a look at it, but the premise nothing is happening doesn't ring true for me from my own experience and is hard to square with AI deciding there is a...

I understand AI is not very reliable and agree one should be very circumspect of its output but honestly I do not have the stamina of focus to do anything else, not without making myself iller which I am not going to do. I accept there are conflicting results between individual papers which are...

I am inspired to start a thread on rigors and night sweats after a dreadful night, looking around for information about what causes these symptoms, which are sometimes part of my experience of ME and night sweats certainly are commonly reported by other PWME. The discoveries summarised by...

Shades of McEvedy and Catch Me If You Can, make stuff up which people will believe and devil take the hindmost. e.g. What does "Mind–Body Link" mean if it is not BPS baloney trying to make a comeback? What does "one condition was found to perpetuate or trigger the other" if it is not asserting...

So biopsychosocial theory promoters looking for academic funding have switched from saying all unexplained disease is somatisation to saying verifiable PTSD causes somatisation (if you cherry pick twelve traumatised people who also have comorbidities). I suppose that is less insane than the...

now GWAS it !

What does mindfulness even mean? This discussion reminds me of "What About Bob?" Hilarious and wickedly observed comedy starring Bill Murray as Bob Wiley and Richard Dreyfuss as the ambitious Dr Leo Marvin. Like the fictional Dr Marvin's fictional "baby steps", mindfulness as CBT seems another...

Judging by the first reference, by one of the authors (Molofsky), it looks like you are both right. https://pmc.ncbi.nlm.nih.gov/articles/PMC10120575/ I feel allergy is relevant to the kind of ME I have aka CFIDS because my experience at onset of recurring HSV2 virus, post EBV, was accompanied...

Also that is not how activity reduction works for me. It is not a sum of legal constraints added to biophysical constraints, it is a result of pacing in response to ill affects from activity. Legal constraint is simply concurrent, is subsumed within and shapes the way one responds to...

https://www.facit.org/measures/facit-f While I am glad people are taking a look at thermal aspects of illness management, I would like to see empirical measures for outcomes which do not rely on self reporting because subjectivity is so subject to bias and there is no blinding thermal...

I don't find any exertion based exercise beneficial in the way it was before ME. Absence of anabolic muscle building seems to be one of the symptoms of my CFIDS subtype of ME with recurring viruses. The only exercise which helps me at all is gentle stretching. I am interested by Tai Chi. Having...

Yup, stunningly wrong. I dont think these people understand ME/CFS at all. I wouldn't really want to read anything they publish. But the practice of Tai Chi would be interesting as a study, if it can be investigated by rigorously scientific academics. In particular I am curious whether this...

I have mentioned this before but I think research criteria for ME/CFS should move beyond clinical diagnostic criteria. I can best describe this by the process required. First take a medic diagnosed group of ME/CFS patients and make a hypothesis or impose a further stricter condition on...