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I have submitted this comment verbatim (including typos) because I believe this work is invalidated by using the Fukuda criteria. This is a problem for ME charities funding CFS research and I believe it cannot be allowed to continue. Research must distinguish subtypes. Of course the last bit...

Its very heartening to see a constructive and common sense approach from De Paul researchers. I have mono based CFIDS myself so I am glad they are taking a look at that.

Thanks, the huge flaw here is that Fukuda is broken, as another Newton paper proved but failed to say. In fact we can say that it has been shown Fukuda eliminates statistical relevance of data for ME and IMHO this is a null result, not worth giving credence...

Poor things. It sounds like a new approach to explore. Thanks for sharing your paper by the way, parallel processing makes sense given the 2D input of the retinas and the massively parallel routing afforded by the optic nerve. Such a big energy user, from an ME perspective I think that is why...

Thanks Roy, those are fascinating articles. re#3 I am pleased to report a decided aversion to the smell of cat pee! But it makes perfect sense unfortunately and I wonder what human civilisation will be like when we have learned to track down and defeat all the bugs responsible for altering our...

I agree with this as I think this converges with the kind of concept I was trying to express in my blog in talking about the development of coordination and the perception of location. One of the first things any new born human baby will try to do is find out how to move objects towards their...

The narrative identity I recognise from my experiences, as a cognitive stream which is almost always present, though there have been times when I have experienced consciousness without it, but only for moments when recovering from 1. waking with a very bad hangover (in my youth after celebrating...

Moderator note: These posts have been moved from another thread. They previously followed this post: https://www.s4me.info/threads/ethical-classification-of-me-cfs-in-the-united-kingdom-2019-diane-oleary.8082/page-8#post-144988 I apologise for fulfilling Godwin's law in my last post, which was...

IMHO the suppression of intellect regarding ME is partly due to the legacy of the insurance treatments of mental illness in the USA where it cost insurers a lot less to contend ME was a mental illness. As always its a case of "follow the money" a phrase made famous in the film "All the...

From a campaigning perspective, I absolutely welcome what you are saying @Diane O'Leary. It does help me to understand this paper, as an ME patient, to know that your perspective is informed by experience of a long period of MUS diagnosis. I am glad that you have recovered well enough to pursue...

IMHO the conclusion does not reflect the method and observations and deductions arising from them. What they appear to have done is to examine a group of Fukuda CFS patients with normal cognition on average and show that if they exclude depression then the remaining CFS patients have a real...

So thinking out loud does this follow from previous miRNA / NK & CD8(+)T cell studies of Marshall-Gradisnik & Staines et al ? 2012 https://www.researchgate.net/publication/224932126_Cytotoxic_lymphocyte_microRNAs_as_prospective_biomarkers_for_Chronic_Fatigue_SyndromeMyalgic_Encephalomyelitis...

Interesting read thanks.

We all need to be treated fairly as human beings but to develope worthwhile research proposals IMHO researchers need to distinguish subgroups. Those of the 25% group who are bedbound suffering bone loss are suffering in a way which can be distinguished from the suffering of those with immune...

I am hopeful that in the Commons debate was the beginning of MP's official recognition of the real situation which I am sure will eventually bear fruit if we keep pushing. I appreciate that you tried to give her (Fiona Watt) a nudge. Many other people tried to communicate...

If patients are sectioned or minors taken into protection and their parents threatened with prosecution their right to deny treatment is effectively denied them. That is part of the problem.

I am a 20 mins behind but was grateful for Stephen Pound's strong statement of recognition and solidarity.

This is very interesting and almost too good to be true, though it is what you would expect if researchers and patients report observations of the same clinical reality, i.e. gene expression measurements corroborating patient reported symptoms. However the big question is, can it be...

Yes good suggestion, I use wordpad in Windows7. Just right click the desktop, select "New>" then "Rich Text Document" and then name and open your new jotter.

Mine's done, to Peter Bone in the Wellingborough constituency. I used https://www.writetothem.com/ as follows, feel free to borrow if it helps.