Search results

Apart from ME associations the trial page also notes some more specific private donors: The legacy of Torstein Hereid Bjørn Rune Gjelsten (private donation) Careless by Sara Emilie Tandberg (an ME/CFS patient and influencer) Credits to them and many thanks if you ever end up reading this!

But wouldn't that be pretty easy to disprove: pwME/CFS don't have considerably higher resting lactate levels which is how those thresholds are defined? Moreover, experiments in the metabolic chamber showed that there were no big differences in pwME/CFS resting vs healthy controls in any of the...

I'm sure the next blog is already being written. To me it looks like for ME/CFS research, 2025 was the year of "genes" which hopefully gives some promising leads for future years to come. At the same I'm reminded by the topics and trends whose death seems to have come along in 2025 (and...

4 years on, looking at Pubmed I can't see that this technology has been used in any autoimmune diseases.

The Long-Covid study using REAP was released a few years ago (Iwasaki's first big study on Long-Covid the "cortisol/EBV study"), the results of the ME/CFS study are discussed here.

At least the author gives some ways to prove/disprove their beliefs one of those is by looking at metabolities in the CSF. I think there should be several ME/CFS studies looking at CSF metabolites. They certainly did so in the intramural study but I didn't find the metabolite listed here, namely...

Yes, in my head I was not thinking about the vaccines data (and rather about the whole statement I quoted "So learned immunity is good, but the cost of experiencing an infection doesn’t outweigh the benefit of the immunity the infection provides.") because I think for vaccines alone there's...

It seems most of the focus on the online discussion is about whether or not certain individuals are benefiting financially from something and how much CBT/GET is included in it all. Which all might be relevant for certain arguments but is completely irrelevant to the question "is this nonsense...

In his own piece on previous EBV-ME/CFS work he explicitly writes "There is certainly sufficient historical precedent from studies of the natural history of other infectious diseases, and of patients with CFS examined at the National Institutes of Health during recent years, that specific mood...

Regarding the Long-Covid aspact, I struggle to see how this is not just another useless "EHR study on Long-Covid". From what I can see for "Long-Covid" they looked at 2 variables in the EHR records. Positive Covid test result recorded in EHR-records and symptom presence of at least one symptom...

Suprised he still has time to answer on Twitter now that he must be pretty busy with the media response to his nobel prize after developing a protocol for the treatment of amongst other things: Multiple Sclerosis, Hashimotos, Guillain-Barre syndrome and Autism according to his own website. I...

Don't know about the other antibodies but I'm pretty sure we've seen studies showing some fluctuating test results for the SARS-COV-2 antibodies including some decay over time. Given the duration of study an asymptomatic infection might also not be completely unlikely in a small subset of...

Don't worry, I will continue to get stomach aches about the things I say, most of the times I speak.

But in that case it's not the suggestion of alcohol that matters, but the suggestion of beverage, which brings us back to where we already were. In my case I have the impression that it can be reliably reproduced independent of the circumstance (but admittedly I see no point of trying drops of...

Possibly, but I'm fairly convinced I don't get the same effects from a glass of juice with some drops of vodka, but I could be wrong.

I'm not quite sure. If you have a trial of a drug and a placebo and the placebo does better than the drug, but the higher response rate is caused by one clinican who predominately prescribed the placebo and who had a much higher response rate in both substances then you can probably have good...

Possibly, but my anticipation was the opposite: I thought I wouldn't feel anything. I'm not sure you always expect something to happen as part of any trials, but something will happen to you independently of that simply because of all the other effects already (Hawthorne effect, Regression to...

As part of most observations, for instance medical trials, I think you can probably almost never tell whether something is a genuine "placebo effect" or rather just something part of the general bucket of "placebo response" and you can never determine if some experienced a "placebo effect" or...

My own understanding: They could only use a subset of the 14 767 DecodeME cases. In DecodeME the 14 767 participants were done in 4 batches and here they could only use the first 3 due to time reasons which made up 12 531 cases. Now due to quality control they could only use 10 569 of those...

That seems sensible to me at first (maybe brain is even too narrow and has to be replaced by "physical change in the body"?), but it seems every definition of the placebo effect actually involves the belief in something. To me that would mean that people reporting improvement as part of...