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I'm wandering if it would be principally possible for this post-doc to also have access to data from DecodeME or if there are any hurdles that would have to be overcome for that to happen?

I find it rather humorous that it was Garner himself who has full of apraise for pacing during his "Long-Covid journey". So it is pacing, scuba-diving, CBT or does it all not really matter when the majority recover from post-viral fatigue?

Considering the rest of things Dr Jake Hollis says I strongly doubt he's much concerned with the literature and more likely just saying what he believes or heard someone say somewhat. Certainly for his business to be profitable he has to say those things on which he builds his business on and...

I think the crucial part which has been alluded to is that they are forms of exertion that we don't understand very well, that is to say they are not really tied to any excessive use of energy in the sense of physics. That is to say, "thinking hard about something" doesn't require more much...

I think this is an important discussion, thank you for opening this thread @Trish. I think one has to approach this topic with more ingenuity than we have seen. I think one might also have to ask: What are the cognitive deficits pwME report or at least what is this "cognitive PEM" some pwME/CFS...

If I'm reading the snippets correctly it seems that they did some in vitro experiments with fibroblasts of a ME/CFS patient with elevated WASF3 expression. Did they collaborate with the NIH WASF3 team to obtain samples from them, did a patient from said study connect with them, is this an...

I interpreted the point of the article to be that ME/CFS should be identified with the condition that is now described in things such as the Canadian Consenus Criteria, that this is a meaningful classification of a syndrome very different from something like chronic fatigue or other already...

Great piece. Something that also stood out to me was the comparison to endometriosis, simply because this was a comparison I hadn't heard of yet or because I had simply forgotten about it. I cannot judge how well fitting the comparison is, but it seems that several GWAS have been conducted in...

Does anybody know why the Acupuncture & Tuina School of Chengdu University of Traditional Chinese Medicine would have interest in this subject, is ChatGPT at the works here or is this a simple review to boost ones H-index?

And a large majority of professional athletes continue doing sports whilst ill, for example with Covid-19. Perhaps there is a relationship, but if the effect was large wouldn't one would expect a much higher rate of athletes with ME/CFS or long-lasting Long-Covid?

Both sound like a good idea to me. Some form of infographics that can easily be shared seems very sensible as well.

It's unfortunate that you feel like your blogs don't initiate quite that much discussion in the online ME/CFS community. I think of them very highly and my hunch is that most members on S4ME think similar. It might simply be that your content is often not suitable to create discussions on...

I think many can reasonably argue that a "general take a survey and see results" study can only meaningfully exist if it doesn't suffer from recruitment bias. I think one would have to understand how this referal system used in the study would work, but I doubt it is worth the effort as the...

Thank you for this piece and for spending time to listening to patients for many years. I agree. I wonder whether "neurocognitive deficits" or whatever the right wording might be for what is often also described as "brain fog" shouldn't be mentioned here as well. It is part of most clinical...

Which probably just shows how meaningless such studies are...

Only glimpsing at the study it looks like they measured a lot of different things, didn't correct for multiplicities and then reported the positive findings in an open label study? Is that standard for how to run such studies? If you don't predefine what your outcome measures are, won't you have...

Yes that is my understanding as well. A high temperature, lymph swellings etc are all the main characteristics of glandular fever, but they are not the main characteristics of ME/CFS. I think I expressed myself badly above. What I was trying to say is that the main characteristics of the acute...

I'm wandering whether this might not be somewhat trigger specific rather than something to do with signals in regards of ME/CFS. Avi Nath has certainly spoken about the "recovery window" and it is certainly a topic amongst Long-Covid patients. When I try to remember my time with glandular...

I was assuming that only people that believe to know that they've had a specific trigger (an infection, an accident etc) would be answering the poll, since the question implies that people are able to identify a trigger in the first place?

For Long-Covid there was a study on this subject early on the pandemic: Characterizing long COVID in an international cohort: 7 months of symptoms and their impact From what I recall the ME/CFS-like LC symptoms tended to occur much later than perhaps the LC symptoms seen in those people that...