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A lot of researchers are pointing at the gut at the moment, so I would like to see that research taken further. I would like to see clear subgroups emerging, because than there can be more specific research on a specific group of people. I have the feeling a lot of effort is wasted now on...

I think this scale is a good beginning, I'm having a lot of recognition in the writing. 25% is you describing me perfectly!! I was actually just thinking of looking for 10 hours of work at home, but then I need help with other things (like get my groceries delivered). 2500 steps are ok...

Very interesting, I’m trying to get the whole article:)

Good luck with the surgery and good recovery Jen! I hadn't been aware of the crowdfunding yet, just donated:thumbup:

I get the antibiotics in a normal dose (to kill the bacteria), but then take probiotics for two weeks and then have another course of AB. I think when it comes to the microbiome, it's just not as simple to kill the bugs. You have to change an entire ecosystem and a lot of the bacteria that you...

If only a higher dose works, than I presume that it is the antibiotic effect that is helping you and not the prokinetic effect. I have experience with changing my microbiome with pulsed antibiotica and probiotics (and getting rid of SIBO and leaky gut). You will need to test constantly and...

If your symtoms are clearing up with erythromycin, than maybe that ís the right antibiotic. In my experience it takes a really long time to get a lasting change in your microbiome. My GI symptoms clear up from certain antibiotics as well, but it's very difficult to get it to last. That's already...

The fact that erythromycin helps you, two things are likely in my opinion: The antibiotics help against a particular bacterial overgrowth you have in your bowel. The other option is that it's the prokinetic effect of erythromycin that works for you. If you read the work of Dr. Pimentel (in my...

How do you know it’s psychosomatic? I’ve seen loads of people with IBS that were initially not that open to diet changes, because they themselves really thought it was stress related. I’m not saying that stress or anxiety doesn’t exacerbate the problem, but all those people got rid of their IBS...

Nice article! There is lot you can find out by eliminating things. Wheat has a lot of fructan and spelt doesn't. They both have gluten. I score on the IgG panel low-positive for wheat and spelt, but I have a real problem with wheat and not so much spelt, so I'm pretty sure it's mostly the...

There are whole specialties that don't deal with deadly disease, but only esthethic or chronic and disabling. I can still remember going to the dermatologist, having very bad eczema just on my hands, I was just amazed with the serious care I got;) At that time I was at my worst, I could hardly...

Very good article! What I find most disturbing about MUS, is that instead of more and more pinpointing to specific diseases, everything gets thrown on a big pile of MUS and given the same treatment. I can't believe that not more doctors and scientist are standing up to this. It seems like going...

Exactly! I was in the last year of studying, but I was ill extremely often (15 courses of antibiotics in that year:jawdrop:). Off course I had stress from being ill that often, having weak muscles, feeling exhausted, and then trying to finish my studies. But the GP kind of talked me into the...

Wow, that is just crazy... Even though every outcome is not agreeing with him, he spins it all to his point of view. How can he never have thought: "maybe the most logical explanation is that the patient is actually right". Gasp! That would be a crazy thought, listings to the...

@BruceInOz :rofl::rofl::rofl::rofl: I was mild for the first 4 years, I believed I had a burnout or something. So I believed it was psychological/stress-related and I believed it would be over pretty soon. I never thought I had ME (had a pretty negative believe about ME/CFS, sorry:speechless:)...

I totally agree. The problem is bigger then "there is no solution for ME". There isn't, at least not for the hallmark symptom PEM. The bigger problem is people are not getting ANY help at all. Not symptomatically, not even for totally unrelated problems. They are even trying to minimize further...

This is seriously the 4th blog in that medical magazine with this kind of horrible uninformed talk about me/cfs. In my opinion, it shows that the effect of the advice of the health council is bigger than I thought. Why would all these doctors (who have nothing to do with me/cfs in their...

That's interesting. I sometimes have to rest aggressively for a few days to get out of a crash, but I sometimes forget that that is not as easy for everyone to do. I have no kids, no job, no money problems and a very understanding partner who does all the cooking and cleaning, a restday really...

Done:thumbup:

I think #realSCIENCEforME is a good one:thumbup: