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I personally, took the “virus” Maureen Hanson was talking about for a methaphor?

Weirdly, I have a chiropractor who does these tests. He has a computer program to test this. After doing the test I had eye-muscle pain & exhaustion for two days, I never have anything like that at all, but I could only lie in bed with my eyes closed for two days. My chiropractor usually...

Yes! I've read that too and the neurologist 5 years ago said that too to me, so I had confidently ruled that out without testing it. But now I'm reading up on LEMS and MG and I read a lot of people struggling with days of weakness after exertion? Also a lot of other problems, gastrointestinal...

I had the same thing! I watched the video and it seems pretty interesting actually! I have been to a neurologist lately, she thinks I might have myasthenia gravis or LEMS. They are both autoimmune channelopathies. I always thought the symptoms didn't fit me, but I've looked on a LEMS forum...

I have a lot of GI symptoms and they came with the start of ME. Not before or after.

I don’t know if the research is sound, but I do wonder why they are looking at tonsillectomy? My ME started after my tonsillectomy. Half year before that I had a horrible skiing accident where I went full speed, accidently turned around, went full speed backwards and fell backwards on my neck...

I think the high sensitive methode measured exact values under 5. The normal CRP just says <5. My hsCRP is always around 5. When I was in remission it was 1. I don’t know if it is relevant. I have a lot of inflammatory markers that are off. For example I had high calprotectine in my stool...

hsCRP is measured in research about chronic low grade inflammatory disease. It's studied as a risk factor for heart disease. There is a lot of consensus now that heart disease start with chronic low grade inflammation. There are people who think ME/cfs is also a chronic low grade inflammatory...

Yes, I agree, when in PEM, all muscles are affected. For me this does feel like a flu-like state which Jonathan Edwards describes. Full body burning, pain and illness. During and right after after exertion, the muscles that I use are specifically affected with musculair fatigue and pain. I’m...

I do agree with this as a possibilty, but there is one thing that also doesn’t correspond with this: the peripheral effects on the muscles that you used. The muscle weakness is specific to the muscles that were used.

Aaaaargggg:banghead::banghead::banghead: Just ignore all the research on physical causes of IBS. Ignore the fact that you can actually get rid of the problem... NO, let's talk about the problem, so you will think differently about running to the toilet all the time:thumbup::bored:

There is a second link for today!

Biking with one leg, I think? If the problem is in the vascular system in the muscles, I can imagine it’s interesting to compare the active muscle with the inactive muscle during exertion. I think there are a lot of people working on the disease from very different angles and it would be...

It was very interesting, am looking forward to tomorrow! I really liked the guy who was responding to David Systrom, who was not familiar with me/cfs, but was an expert on exercise intolerance. He said: this is a circulatory control problem, until proven otherwise. I thought it was pretty...

Same here. Although it's hard to say, as I've never had much stress, I'm a pretty laid back person with an easy life (except for this illness;)). A little bit of stress (something needs to get done now!) makes my symptoms better actually, but it's of no use in the long term off course, as that...

I don't have relapse/remit. I was just slowly getting worse and now slowly getting better. First four years I wouldn't have even said I was ill, I had enough good days, where I was normal and then would do "too much" and become ill again. In the beginning I just thought it was weird that I was...

Yes, I had very low C3 and C4.

I have always felt that it seems more like a parasympathetic problem, there is something wrong with the rest phase. Normal resting doesn't work and I have always felt that, even when mild, a PEM cascade seemed to start the moment I started to rest.

I’ve read the blog. It almost has nothing personal in it, it reads like a advertisment... I also feel it has a lot of inconsistency, he apparantly walks 32 minutes, but also works and has meetings??

I think this is very interesting to think about. I also hope that the problems of the BPS model as a whole come to light and not only for ME. We don't want the same thing happening to the next unexplained disease, it's already happening with chronic pain. I don't really get the discussion...