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Interesting study! I think this just complements the last study of van Campen where 90% of ME/CFS patients has OI symptoms and less blood flow to brain and body, most WITHOUT POTS. They also found that there is no difference between mild and moderate patients. Patients who did 8000 steps a...

I love your blogs Anil! You are a very good writer. I still point people to your earlier blogs if they want to understand the whole cbt/get saga:) I can’t imagine how much effort it must be for you to write something like this

I would really want to speak to one of these researchers. What kind of people are they seeing in real life, what makes them think this has any function in real life whatsoever? I heard a distant relative of mine (a GP) once comment on her practice. She works in a large city, in a pretty "bad...

I'm wondering about two factors where they might have not found anything in the past: One factor is the "serum" factor, where they are now seeing things if you keep the cells in the me/cfs serum, I think that is new? If you are looking for structural or functional problems in mitochondria, in...

Do you think the technology and knowledge in that time were sufficient to be sure that they didn't find anything?

I see this paper more as a hypothesis-kind of paper, but I'm happy that someone has followed up on the serum swap idea. Because to me that seems like a relevant finding. What I find interesting about the serum swap, is that this means there is nothing wrong with the cell or the mitochondria...

Yes, this! I actually joined this gym where it was cheaper the more you came to the gym. When you went three times a week it was 2,- a month I think. I thought that it would help me to just go every day and do very little, do some weight lifting, go into the sauna, and build it up like that...

I am conserving my energy all the time. Just because it is so limited and I want to spent it on things I love or need to do. This is the complete opposite to the general population, who have to do extra exercise on top of their normal life, take the stairs, get more steps done! It’s just a weird...

I, jokingly, call my activity “boom and bust”, sometimes you have to be practical. Of course, there is no actual boom, but a very very small tiny boom, the bust is hours of rest before and after. My choices are between working two hours a day four days a week, or working 4 hours in two days...

That's the beauty of the psychological explanation. You can never prove it or disprove it, so it is always true. Who can determine what is "sufficient psychological distress"? If you would get any of these problems form psychological distress, wouldn't warzones be flooded with people with me/cfs?

The theory of central sensitisation always reminds me of this. I have tried to find more evidence for it, but there seems to exist nothing. It’s really an extremely thin theory.

I was looking for the definition of a-typical depression, but there it is. So, it’s pretty much nothing specific? Random symptoms?

Oh I like this! There needs to be a clear explanation that burn out syndrome is not Me/cfs. Burn out is the go-to-diagnose-for-everything-I-don’t understand now for docters, so it’s good to pay attention to the differences. I think it’s not that hard to diagnose the difference, if you know...

Wow, I think this study deserves a price for most ridiculous study:banghead::laugh: Low back pain is such a prevalent problem, so much waste of healthy years and a very large economic waste as well. This way of thinking just keeps turning in circles and circles. There was one "biomedical" idea...

I agree. If they can get away with this with IBS, it will have an impact on ME/CFS. Although the ME/CFS community is a lot more outspoken than the IBS community. The difference is that we know that IBS is happening in the gut, so it's less vague. There is a ton of research that the microbiome...

Where does the money come from to do these studies?? Seriously?? Why not just do some psychosocial studies on chronically ill patients in general, I'm sure social help would be very useful for a lot of people. Why do the same studies on every disease, it doesn't make any sense....

There have been a few studies in this area. There was a study where they checked the urine of chronic UTI patients with a DNA-based test, instead of the old standard test. I think it was 98% that had a chronic infection... Most had a more complicated infection than a standard E.coli. I think it...

I was absolutely convinced I did not have orthostatic intolerance or POTS. I went to a (ME/CFS) cardiologist to rule it out (his research was presented on the NIH congres). We did a table tilt test, WITH measurements of blood flow to the body and the brain (measurement of arterial vein...

Wow, sometimes I wonder if I really have me/cfs, but then I read this and it's spot on! When I was really mild, I didn't know that exertion was the problem. So I thought for a long time the symptoms were random. It started with a lot of infections for me, mostly bladder (about 20 in one year)...

I was wondering if anyone here has any knowledge about CRPS? A close family member broke a little bone in his foot 6 months ago. Within two weeks the foot was weirdly colored and only got more and more painful. Because there is an aunt who had CRPS 20 years ago, we knew what it was pretty...