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All things in moderation. This article peaked my interest pointing out that for those who are taking high levels of probiotics they may be causing as many problems as they solve. https://www.sciencedaily.com/releases/2018/08/180806095213.htm From the article: "Probiotic use can result in a...

For those who aren't familiar with PCR testing (I needed a refresher - googled emedicinehealth) "PCR amplification is only part of the identifying test, however. Once the amplification is done (see below), the amplified segments need to be compared to other nucleotide segments from a known...

This is a fascinating discovery. I would, of course, be asking a lot of questions. Were they looking at antibodies that require a "normal" immune response? Does this finding show that the immune system is so revved up it is taking out more viruses than the average person? I'm seeing that as...

I am speaking from the US perspective - See my other response regarding the behavior modification treatments promoted by the US CDC in my other response. Also - I appreciate the clarification about differing points of view being expressed on here. At some point though, some basic agreement...

This thread is specifically about the US has proposed giving ME, CFS, and SEID three different ICD codes. So this isn't my argument about "what is what". This is a discussion trying to clarify how to address the proposal that is being put forth that makes all three of these separate diseases...

I wasn't specifically referring to CBT and GET. Sorry that was not clear. I was referring to treatments being based on patients changing their behavior instead of doctor intervention. I'm referring to the CDC recommendations that is all about "living with ME/CFS"... nothing about actually...

A biomarker can't be found if vague and imprecise case definitions are used. Experts who had seen thousands of patients and had a good handle on recognizing this specific population created the CCC and then the ICC. This was done so researchers would stop looking at the wrong patient...

A biomarker can't be found if vague and imprecise case definitions are used. Experts who had seen thousands of patients and had a good handle on recognizing this specific population created the CCC and then the ICC. This was done so researchers would stop looking at the wrong patient...

I am aware there are experts in this group. Which is why I joined in the first place. I disagree that CBT/GET has nothing to do with case definitions. If the case definition specifically states the danger of exertion leads to damage of the patient, then the case definition would most...

Thank you for clarifying. As the name of this group is Science for ME. (Not Science for ME and CFS and SEID and PVFS) I understood the focus of this specific discussion to be about ME. For me ME is described by the ICC and at its core (the aspect of ME that has impacted my life the most) is...

Please note I am referring to ME and CFS from the perspective of being in the US. I believe patients should educate themselves about the issues surrounding a CFS diagnosis that leads doctors to treat with CBT and GET. We have doctors here who use the term CFS but treat the immune...

And now I fully understand the crux of this miscommunication if you are sure ME does not include immune abnormalities. I have immune abnormalities.. of that there is no doubt. So are you saying I must have a different disease? This also explains why you would not consider the ICC a viable...

And now I fully understand the crux of this miscommunication if you are sure ME does not include immune abnormalities. I have immune abnormalities.. of that there is no doubt. So are you saying I must have a different disease? This also explains why you would not consider the ICC a viable...

Do you have details about any of them? Do any of them base their education on the IC Primer? Historically what we have seen leaves those of us who are low moderate, severe, and very severe without any medical support. No information about immune abnormalities, paralysis, the serious...

Can you clarify for us which of these listed below have failed to replicate? Is there an assurance you can give that the people who these did not replicate in would fit the ICC? Could it come down to we are talking about 2 different patient populations. As the IOM states CFS and ME are...

You are correct. This issue of the ICD code is specific to the United States. Therefore the concerns are specifically for how the US doctors will be responding to patients. Yes... a doctor "could" use G93.32 if he was educated to do that and there was a diagnostic criteria in the US that had...

I believe some of what you are looking for will be found in the post I just did that includes a number of studies involving the brain in ME patients.

Thank you for asking for clarification. Cognition issues are definitely covered. But the outcome of that information lands us right back in cognitive behavior therapy. Cognition issues can stem from many things.. like alcohol abuse - lack of sleep - etc. The take I'm getting from the...

For me it comes down to how patients are going to be treated depending on the diagnosis they are given. This may be a bit round about way of answering your question, but any answer I give is based on what the patients are going to get out of it. I realize a lot of these discussions are...

The immune issues in ME go far beyond the sore throat mentioned in SEID. There are multiple studies showing B cell, Th1 Th2, NK cell function issues to name a few. The support group I run created a cheat sheet for the immunological issues to look for. Here is a bit from that cheat sheet...